Kids

How Spastic Diplegia Affects Movement and Muscle Tone in Children

Spastic diplegia is one of the most common types of cerebral palsy (CP), and it primarily affects movement and muscle tone in the legs. For parents, understanding how spastic diplegia impacts their child’s daily life and what can be done to improve mobility can make a significant difference in navigating care and support.

Dr. David Siambanes provides specialized orthopedic care for children with spastic diplegia in Tampa Bay and the surrounding areas. His expertise in pediatric orthopedics, spinal deformities, and motion analysis helps families explore the most effective treatments for improving movement, comfort, and independence.

What is Spastic Diplegia?

Spastic diplegia is a form of cerebral palsy that results from damage to the part of the brain responsible for controlling movement. In spastic diplegia, this damage leads to increased muscle tone (spasticity) in the legs, while the arms may be only mildly affected or not at all.

The term spastic refers to muscle stiffness or tightness that makes it harder to move certain parts of the body. Diplegia means that the condition affects both sides, primarily both legs.

How Spastic Diplegia Affects Movement

Children with spastic diplegia often have tight muscles in the hips, thighs, and calves. This muscle stiffness can make walking, standing, and balance more difficult. Common signs of spastic diplegia include:

  • Toe walking due to tight calf muscles pulling the heels off the ground
  • Scissoring gait, where the legs cross at the knees when walking
  • Stiffness in the hips and knees, limiting the range of motion
  • Difficulty with balance and coordination, leading to frequent falls or trouble with activities like running
  • Weak core muscles, making posture and stability harder to maintain

While many children with spastic diplegia can walk, their walking may be slow, awkward, or energy-consuming. Some children may need walkers, crutches, or wheelchairs for longer distances.

How Muscle Tone is Affected in Spastic Diplegia

In spastic diplegia, the increased muscle tone means that certain muscles are always “on.” They are tighter than they should be, even when the child is at rest. This ongoing tightness:

  • Makes stretching and straightening the legs difficult
  • Can lead to joint contractures (permanent tightening of muscles and tendons) over time
  • Contributes to discomfort or pain, especially as the child grows

The uneven pull of tight muscles can also cause joint deformities, such as hip dislocation or curvature of the spine (scoliosis), if not properly managed.

Available Treatments to Improve Mobility

While there is no cure for spastic diplegia, there are many treatments that can help improve mobility, reduce discomfort, and prevent complications. The goal is to create a personalized plan that meets your child’s unique needs.

Physical Therapy

Physical therapy is one of the most important treatments for spastic diplegia. Therapists work with children to:

  • Stretch tight muscles
  • Strengthen weaker muscles (especially in the core)
  • Improve balance and coordination
  • Practice walking and other functional movements

Consistent therapy helps reduce stiffness and supports better posture and mobility over time.

Bracing and Orthotic Devices

Ankle-foot orthoses (AFOs) and other braces are often used to:

  • Support the feet and ankles
  • Prevent toe walking
  • Encourage better alignment during standing and walking

Braces are custom-made to fit your child and may be worn during the day, at night, or both, depending on their needs.

Medications and Injections

For children with significant muscle tightness, medications may help:

  • Oral medications can relax muscles, though they often affect the whole body and may cause side effects.
  • Botox injections can be used to target specific tight muscles, temporarily reducing spasticity and improving range of motion.

Botox is often combined with therapy and bracing to maximize benefits.

Serial Casting

Serial casting involves placing a series of casts on the legs to gently stretch tight muscles over time. This non-surgical approach can help improve ankle flexibility and reduce toe walking.

Surgical Options

When other treatments are not enough, surgery may be recommended. Dr. Siambanes specializes in orthopedic surgeries that can:

  • Lengthen tight muscles or tendons (such as the hamstrings or Achilles tendon)
  • Correct bone or joint deformities
  • Improve hip stability and reduce the risk of dislocation

These procedures can significantly enhance walking ability, comfort, and overall quality of life.

How Dr. Siambanes Can Help Children with Spastic Diplegia

Dr. David Siambanes is a board-certified orthopedic surgeon with fellowship training in pediatric orthopedics and spinal deformities. His passion for caring for children with disabilities has led him to become a leader in cerebral palsy treatment.

At Children’s Cerebral Palsy, Dr. Siambanes combines surgical expertise with advanced technology. As director of the Motion Analysis Center at St. Joseph’s Children Hospital, he uses 3-D gait analysis to assess your child’s walking patterns and pinpoint the specific barriers to better movement. This allows for a highly personalized approach to treatment, whether that means therapy, bracing, injections, or surgery.

Dr. Siambanes has helped countless children with cerebral palsy and spastic diplegia achieve greater independence, reduce pain, and improve their ability to participate in daily life.

Help Your Child Regain Mobility

Spastic diplegia presents unique challenges, but with the right care, children can make remarkable progress. Dr. Siambanes is dedicated to working alongside families to provide comprehensive, compassionate care every step of the way.

If you have questions about your child’s movement or muscle tone, or if you’re exploring treatment options for spastic diplegia, contact us today to schedule a consultation with Dr. Siambanes. Together, we can help your child take meaningful steps toward improved mobility and confidence.

How Spastic Diplegia Affects Movement and Muscle Tone in Children
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Is Cerebral Palsy Genetic? Understanding the Role of Genetics in CP

Cerebral palsy (CP) is a neurological condition that affects movement, posture, and muscle tone. For many years, CP was believed to be caused almost exclusively by birth complications or injury to the developing brain. However, recent research, including new insights from whole-genome sequencing, is changing how we understand this condition, raising the question many parents are now asking: is cerebral palsy genetic?

What Causes Cerebral Palsy?

Cerebral palsy is caused by abnormal brain development or damage to the developing brain, typically before, during, or shortly after birth. Common known risk factors include:

  • Lack of oxygen during birth (asphyxia)
  • Premature birth or low birth weight
  • Infections during pregnancy
  • Traumatic brain injury in infancy
  • Stroke or bleeding in the brain before or shortly after birth

However, despite these known causes, many cases of cerebral palsy cannot be explained by birth trauma or medical complications alone. This has led researchers to explore whether genetic factors may also play a role.

Can Cerebral Palsy Be Genetic?

Recent studies suggest that genetics may contribute to the development of cerebral palsy in a significant number of cases. A Canadian-led study published in Nature Genetics in 2024 found that more than one in ten children with CP had a gene variant associated with their condition. An additional 17% of children had variants of unknown significance that may be linked to CP after further research.

These findings suggest that for some children, genetic mutations affecting brain development may be a contributing factor to CP or increase vulnerability to brain injury before or during birth.

What Does This Mean for Families?

The discovery of a genetic link does not mean that CP is always inherited or passed down through families. In fact, many of the gene changes identified in recent studies are de novo mutations (spontaneous changes that occur for the first time in the child and are not present in either parent)

However, in some families, especially those with multiple children affected by neurological disorders, inherited genetic patterns may play a role.

At this stage, we can say that while cerebral palsy is not typically a genetic disorder, it can have genetic contributions in some cases, and these may be more common than previously understood.

The Value of Genetic Testing

As more is learned about the connection between genetics and cerebral palsy, genetic testing is becoming an increasingly valuable tool in diagnosing and managing the condition. Testing can:

  • Help explain the underlying cause of CP in certain children
  • Identify associated conditions (such as autism or epilepsy) that may share a genetic basis
  • Guide more personalized treatment and care plans
  • Provide clarity for families who may be planning future pregnancies

Dr. Siambanes’ Role in Advanced Cerebral Palsy Care

Dr. Siambanes is a board-certified orthopedic surgeon, fellowship-trained in pediatric orthopedics and spinal deformities. As director of the Motion Analysis Lab at St. Joseph’s Children’s Hospital, he helps families understand how neuromuscular challenges affect a child’s movement and function and how interventions such as bracing, physical therapy, or surgery can improve quality of life.

Although he does not perform genetic testing himself, Dr. Siambanes is deeply involved in guiding the comprehensive treatment of children with cerebral palsy, regardless of its cause. Whether a child’s CP is linked to a birth injury, genetic factor, or unknown cause, his goal remains the same: improve mobility, reduce pain, and support independence.

Click here to request a consultation with Dr. Siambanes today.

Is Cerebral Palsy Genetic? Understanding the Role of Genetics in CP
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Toe Walking with Cerebral Palsy: Causes and Treatments

Toe walking is a common issue seen in children with cerebral palsy, especially those with spasticity affecting the lower legs. While many toddlers briefly go through a phase of walking on their toes, persistent toe walking — particularly in children with cerebral palsy — often indicates an underlying muscular or neurological cause.

If your child is frequently walking on their toes, it’s important to understand why it’s happening and what treatment options are available. At Children’s Cerebral Palsy, Dr. David Siambanes offers expert orthopedic care to help address the causes of toe walking and guide families toward the most effective solutions.

What is Toe Walking?

Toe walking refers to a walking pattern where the heel does not touch the ground. Instead, the child walks on the balls of their feet or their toes. In cerebral palsy, this walking pattern is typically due to muscle tightness or imbalances that limit flexibility in the lower leg and foot.

Persistent toe walking can cause pain, instability, and long-term changes in foot and joint structure if left untreated. It can also affect balance, coordination, and energy levels during walking, making daily activities more difficult for your child.

Why Does Toe Walking Happen in Children with Cerebral Palsy?

Toe walking in cerebral palsy is most commonly caused by spasticity, which is the involuntary tightening or stiffness of muscles. Children with spastic cerebral palsy often have increased tone in the calf muscles (gastrocnemius and soleus), which prevents the heel from touching the ground during walking.

Other contributing factors include:

  • Shortened Achilles tendon or calf muscles
  • Poor muscle coordination
  • Weakness in opposing muscle groups
  • Balance or sensory challenges
  • Delayed motor development

Over time, untreated toe walking can lead to joint contractures (permanent tightening of the muscles and tendons), abnormal gait patterns, and even pain in the feet, knees, or hips.

When to Seek Help for Toe Walking

If your child consistently walks on their toes, especially past the toddler years, it’s worth getting an evaluation, particularly if they have cerebral palsy or other neuromuscular conditions. Early intervention can help prevent complications and support better long-term outcomes.

Signs it may be time to seek help include:

  • Toe walking that persists beyond age 2 or 3
  • Your child avoids putting their heels down entirely
  • Toe walking is accompanied by pain, falls, or poor balance
  • Tightness in the calves or reduced range of motion in the ankle
  • Toe walking that worsens over time

Treatments for Toe Walking in Cerebral Palsy

The goal of treatment is to address the root cause of toe walking — usually muscle tightness or imbalance — and help your child develop a more natural, functional walking pattern. Dr. Siambanes, a fellowship-trained pediatric orthopedic surgeon, takes a personalized approach to care based on your child’s specific needs and mobility goals.

1. Physical Therapy

Targeted stretching and strengthening exercises can help lengthen tight calf muscles and improve ankle flexibility. Physical therapists may also work on balance, posture, and walking mechanics.

2. Orthotic Devices and Bracing

Ankle-foot orthoses (AFOs) are commonly used to support proper foot alignment and prevent toe walking. Rigid or hinged AFOs can hold the foot in a more neutral position and reduce the strain on tight muscles.

3. Botox Injections

Botulinum toxin (Botox) can be injected into overly tight muscles to temporarily reduce spasticity and allow for improved range of motion. This is often paired with physical therapy or bracing to maximize results.

4. Serial Casting

In some cases, a series of casts may be applied over several weeks to gradually stretch and lengthen tight calf muscles. This non-surgical approach is especially useful when the goal is to improve flexibility without permanent intervention.

5. Surgical Intervention

If conservative treatments are not successful, surgery may be necessary. Dr. Siambanes specializes in procedures such as tendon lengthening, which can release tight calf muscles or adjust foot alignment. Surgical correction is often recommended when toe walking causes pain, impairs function, or leads to contractures.

Advanced Care with Dr. Siambanes

As the director of the Motion Analysis Center at St. Joseph’s Children’s Hospital, Dr. Siambanes uses 3D gait analysis to precisely assess walking patterns and identify the physical barriers contributing to toe walking. This advanced tool allows him to develop highly targeted treatment plans and ensure your child is receiving the most effective care.

Dr. Siambanes has performed countless procedures to help children walk more comfortably and confidently. His experience in managing cerebral palsy-related deformities, combined with his compassionate approach to care, makes him a trusted partner for families navigating complex mobility challenges.

Improving Mobility, One Step at a Time

Toe walking may seem like a small issue, but it can have a big impact on a child’s comfort, confidence, and ability to participate in daily life. With early intervention and expert care, most children with cerebral palsy can make significant improvements in their gait and overall mobility.

If your child is toe walking, don’t wait to seek support. Click here to contact Children’s Cerebral Palsy to schedule an evaluation with Dr. Siambanes and take the first step toward better movement, improved function, and greater independence.

Toe Walking with Cerebral Palsy: Causes and Treatments
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Recognizing Hip Dysplasia Symptoms in Children with Cerebral Palsy

Children with cerebral palsy often face a range of orthopedic challenges, and one of the most common complications is hip dysplasia. This condition occurs when the hip joint does not develop properly, leading to instability, misalignment, and in some cases, severe pain.

In children with cerebral palsy, especially those with spastic quadriplegia, muscle imbalances can pull the hip out of its socket over time, increasing the risk of dislocation. Early recognition of hip dysplasia is essential to prevent pain, improve mobility, and avoid long-term complications.

Dr. David Siambanes, a board-certified orthopedic surgeon specializing in pediatric orthopedics and spinal deformities, has extensive experience diagnosing and treating hip dysplasia in children with cerebral palsy. His expertise helps children maintain comfort, improve sitting tolerance, and reduce the risk of future mobility issues.

What is Hip Dysplasia?

The hip is a ball-and-socket joint, where the top of the thigh bone (femoral head) fits into the curved part of the pelvis (acetabulum). In children with hip dysplasia, this joint doesn’t form correctly. The ball may sit loosely in the socket or move partially — or completely — out of place.

For children with cerebral palsy, muscle tightness and imbalances can pull the hip out of alignment, gradually leading to hip subluxation (partial dislocation) or hip dislocation (complete separation of the ball from the socket). Without treatment, hip dysplasia can cause chronic pain, reduced mobility, and difficulties with sitting or standing.

Why Children with Cerebral Palsy Are at Higher Risk

Cerebral palsy affects muscle tone and control, often leading to spasticity (increased muscle stiffness) or hypotonia (decreased muscle tone). In children with spastic cerebral palsy, tight muscles can pull unevenly on the hip joint, gradually leading to misalignment.

Children who are non-ambulatory or spend much of their time in a seated position, such as those with spastic quadriplegia, are especially at risk. The lack of weight-bearing activities, like walking, can limit proper hip development, making dislocation more likely over time.

Common Symptoms of Hip Dysplasia in Children with Cerebral Palsy

Hip dysplasia symptoms can sometimes be difficult to detect, especially in non-verbal children who cannot express their discomfort. However, there are signs that parents and caregivers can watch for:

1. Pain and Discomfort

Pain is often the most noticeable symptom of hip dysplasia. Children may experience:

  • Discomfort during diaper changes or when legs are moved
  • Pain when sitting, especially for extended periods
  • Crying or irritability when the hip is manipulated or under pressure
  • Pain even while at rest in severe cases

Non-verbal children may express pain through agitation, crying, or changes in behavior.

2. Limited Range of Motion

Hip dysplasia can cause stiffness in the hip joint, making it difficult to:

  • Spread the legs apart during diaper changes
  • Move the hips into different positions
  • Sit comfortably without leaning to one side

Parents may notice that one leg appears stiffer or harder to move than the other.

3. Asymmetrical Leg Positioning

Children with hip dysplasia often have one leg that appears longer or shorter due to the misalignment of the hip. Other signs of asymmetry include:

  • One hip or buttock appearing higher than the other
  • Uneven skin folds on the thighs or buttocks
  • A noticeable tilt in the pelvis when sitting

4. Difficulty Sitting or Standing

When the hip is out of alignment, children may struggle to sit upright or balance evenly while standing. In wheelchair-dependent children, poor hip positioning can make it harder to maintain an upright seated posture, increasing the risk of pressure sores and spinal curvature.

5. Audible Clicking or Popping Sounds

In some cases, the hip may make clicking or popping sounds during movement. While not always painful, these sounds can indicate that the hip is unstable or partially dislocated.

The Importance of Early Detection

If left untreated, hip dysplasia can progress to a full dislocation, leading to severe pain and further limitations in mobility. Early detection allows for less invasive treatment options and can prevent long-term complications.

Dr. Siambanes emphasizes the importance of routine orthopedic evaluations for children with cerebral palsy. Using advanced imaging techniques and the Motion Analysis Lab, he can assess your child’s gait, posture, and joint health to catch early signs of hip dysplasia before it becomes more severe.

Treatment Options for Hip Dysplasia Symptoms in Children with Cerebral Palsy

The goal of treatment is to restore proper hip alignment, reduce pain, and improve function. Treatment plans vary based on the severity of the misalignment and the child’s overall mobility.

1. Non-surgical Interventions

  • Physical Therapy can help strengthen surrounding muscles and improve hip positioning.
  • Bracing or Orthotic Devices may be used to support the hip and prevent further misalignment.
  • Botox Injections can reduce muscle spasticity around the hip, making it easier to maintain proper alignment.

2. Surgical Options

For children with significant misalignment or pain, surgery may be necessary. Dr. Siambanes specializes in procedures that relocate the hip joint and stabilize it within the socket. These surgeries are often performed between ages 7 and 12, allowing for optimal hip development as the child grows.

Surgical intervention can dramatically improve a child’s sitting balance, mobility, and overall comfort, especially for those who rely on wheelchairs or spend extended time in seated positions.

Supporting Your Child’s Comfort and Mobility

Recognizing the signs of hip dysplasia early is crucial in helping your child avoid pain and maintain as much independence as possible. If you notice any of the symptoms listed above or have concerns about your child’s hip development, don’t hesitate to reach out to a specialist.

Dr. Siambanes is committed to helping children achieve better mobility, improved sitting tolerance, and a higher quality of life. With expertise in both non-surgical and surgical treatments, Dr. Siambanes provides comprehensive care tailored to your child’s unique needs.

Schedule a Consultation Today

If you’re concerned about your child’s hip health, contact Children’s Cerebral Palsy to schedule a consultation with Dr. Siambanes. Early intervention can make all the difference in preventing pain and supporting your child’s mobility as they grow.

Recognizing Hip Dysplasia Symptoms in Children with Cerebral Palsy
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Hypotonic Cerebral Palsy: Low Muscle Tone in Children

While cerebral palsy is often associated with high muscle tone, muscle stiffness and spasticity, some children experience the opposite — low muscle tone, known as hypotonia. Hypotonic cerebral palsy affects a child’s strength, posture, and movement, making everyday activities more challenging. 

What is Hypotonic Cerebral Palsy?

Hypotonic cerebral palsy is a less common form of cerebral palsy characterized by decreased muscle tone, which makes muscles feel floppy or weak. Unlike spastic cerebral palsy, where muscles are stiff and tight, children with hypotonia have difficulty maintaining muscle control and posture due to reduced muscle tension.

This condition results from damage to the parts of the brain responsible for muscle coordination, often occurring before, during, or shortly after birth. Because muscle tone plays a key role in movement, balance, and strength, children with hypotonic cerebral palsy may experience delays in reaching developmental milestones such as sitting, crawling, or walking.

Signs and Symptoms of Hypotonic Cerebral Palsy

Children with hypotonic cerebral palsy may show symptoms early in life, often appearing “floppy” when held. Some common signs include

  • Delayed motor development: Difficulty lifting the head, rolling over, or sitting up without support.
  • Poor posture: A tendency to slump forward or struggle to maintain an upright position.
  • Weak muscle control: Arms and legs may appear limp, making movements uncoordinated.
  • Difficulty swallowing or feeding: Weakened oral muscles can make eating and speaking challenging.
  • Loose joints and hypermobility: The child may have excessive flexibility due to a lack of muscle resistance.
  • Fatigue and endurance issues: Low muscle tone can make even simple activities tiring.

How Hypotonic Cerebral Palsy Affects Daily Life

Children with hypotonic cerebral palsy often require additional support in daily activities. Weak muscle control can make standing, walking, and even holding objects more difficult. Tasks that require sustained effort, like sitting upright for long periods, may be exhausting. Some children may also experience breathing difficulties due to reduced muscle tone in the chest.

Despite these challenges, many children with hypotonic cerebral palsy can make significant progress with the right treatment and support. Early intervention is key to helping them develop strength, coordination, and independence.

Treatment Options for Low Muscle Tone in Children

1. Physical and Occupational Therapy

Therapy plays a crucial role in managing hypotonic cerebral palsy.

  • Physical therapy focuses on building strength, balance, and coordination through targeted exercises.
  • Occupational therapy helps children develop fine motor skills needed for daily activities like dressing, eating, and writing.

2. Bracing and Orthotic Support

Children with weak muscle tone often benefit from orthotic devices such as ankle-foot orthoses (AFOs) to provide stability and improve posture. These supports help prevent joint misalignment and make walking easier.

3. Speech and Feeding Therapy

If low muscle tone affects the face, mouth, or throat muscles, speech therapy can help improve swallowing, speech clarity, and oral motor function. Specialized exercises and feeding techniques may also be introduced to ensure safe and effective eating.

4. Strengthening Exercises

Engaging in activities that encourage movement, such as swimming or adapted sports, can help build muscle endurance and improve coordination. Therapy programs are often designed to make exercise fun and engaging for children.

5. Surgical Interventions

For children with severe joint instability or posture-related issues, surgical intervention may be necessary. Dr. David Siambanes is a board-certified orthopedic surgeon and fellowship trained in both pediatric orthopedics and spinal deformities. He specializes in procedures that enhance mobility and sitting tolerance, helping children maintain better posture and reduce pain. As the director of the Motion Analysis Center, he uses advanced gait analysis technology to assess movement challenges and determine the best treatment options.

The Importance of Early Intervention

Early diagnosis and treatment of hypotonic cerebral palsy can significantly improve a child’s ability to move, engage in daily activities, and build independence. With the right combination of therapy, bracing, and medical interventions, many children can achieve greater mobility and quality of life.

Dr. Siambanes is dedicated to providing specialized care for children with hypotonic cerebral palsy. Whether through therapy, orthotic support, or surgical solutions, his goal is to help every child reach their full potential.

How Dr. Siambanes Can Help

Hypotonic cerebral palsy presents unique challenges, but with the right support, children can make remarkable progress. Through expert medical care, therapy, and adaptive strategies, families can help their children build strength and confidence in their abilities.

If you have concerns about your child’s muscle tone or mobility, click here to request a consultation with Dr. Siambanes. Together, we can create a personalized plan to support your child’s development and well-being.

Hypotonic Cerebral Palsy: Low Muscle Tone in Children
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Holiday Travel Tips for Kids with Cerebral Palsy

The holiday season brings cherished moments with family and friends, but for parents of children with cerebral palsy, traveling can pose unique challenges. From packing essential items to planning for accessibility, a little preparation can make your holiday journey smoother and more enjoyable for everyone. Here are some practical travel tips to help you navigate holiday travel with confidence and ensure a comfortable experience for your child with cerebral palsy.

1. Plan Ahead for Accessibility

Before heading to your destination, call ahead to confirm accessibility accommodations. Whether you’re traveling by car, plane, or train, ask about facilities like accessible restrooms, elevators, or ramps. For air travel, notify the airline in advance of any special needs to ensure wheelchair access, priority boarding, or other assistance. Many airlines and transportation services have policies to make travel easier for families with disabilities, but these often need to be arranged in advance.

Helpful Tip:

Request aisle seats for more room if you’re flying, or seats near an exit for easier access if you’re taking the train.

2. Bring Essential Equipment and Comfort Items

Traveling with cerebral palsy may require additional equipment to ensure comfort and mobility. Don’t forget essentials like wheelchairs, walkers, or any braces and orthotics that your child uses regularly. Pack comfort items, such as favorite pillows, blankets, or sensory toys, to help them feel more at ease in unfamiliar surroundings.

Suggested Packing List:

  • Wheelchair or mobility device
  • Braces, orthotics, or other supportive equipment
  • Extra batteries or chargers (for powered devices)
  • Favorite comfort items (blanket, stuffed animal, etc.)
  • Portable snacks and drinks for quick energy boosts

3. Prepare Medications and Medical Supplies

If your child takes medication or has specific medical needs, ensure you have an adequate supply for the trip and bring extra, if possible. Pack medications in their original containers and place them in an easily accessible bag for quick retrieval. It’s also a good idea to carry a copy of your child’s medical information, including prescriptions and contact information for their healthcare providers.

Essential Medical Supplies:

  • Daily medications and extras
  • Emergency contact information
  • Medical documentation and prescriptions
  • Portable medical devices (like nebulizers if needed)

4. Schedule Frequent Breaks

Long periods of sitting can be uncomfortable for children with cerebral palsy, especially those with high muscle tone. Schedule regular breaks to allow your child to stretch, move, and reset. If you’re driving, plan stops at rest areas along the way. If you’re flying, consider taking walks down the aisle when safe to do so, or finding quiet areas in the airport to relax before boarding.

Pro Tip:

Allowing time for stretching or light movement during breaks can reduce muscle stiffness and make the journey more pleasant for your child.

5. Create a Sensory-friendly Environment

Holiday travel can be overwhelming for children with sensory sensitivities. Crowded airports, loud noises, and bright lights can lead to overstimulation and stress. Bring noise-canceling headphones, sunglasses, or sensory toys to help your child cope with these stimuli. Some families also find it helpful to bring a weighted blanket or lap pad, which can provide comfort and a sense of security.

Helpful Item Suggestions:

  • Noise-canceling headphones
  • Sunglasses to reduce light sensitivity
  • Weighted blanket or lap pad
  • Fidget toys for sensory engagement

6. Prepare Your Child for the Journey

Explaining what to expect during the trip can ease anxiety for many children. Talk to your child about the different parts of the journey, such as going through security at the airport, boarding a plane, or making stops along a long car ride. Visual aids, like pictures or videos of airports and airplanes, can help familiarize them with new environments and reduce any fears or uncertainties.

Tip for Younger Children:

Use a social story to walk through each step of the travel process. This can be especially helpful for children with limited communication abilities.

7. Practice Patience and Flexibility

Traveling with children often comes with unexpected changes, and for parents of children with cerebral palsy, flexibility is key. Allow extra time for each step of the journey, whether it’s passing through airport security, loading the car, or navigating a busy rest stop. Building in time for adjustments can help keep stress levels low and allow you to handle any surprises with ease.

Reminder:

It’s okay if things don’t go exactly as planned — focus on enjoying the journey and making memories along the way.

8. Know When to Ask for Help

Many airports, train stations, and other facilities offer support services for families with children with disabilities. Don’t hesitate to reach out for assistance, whether you need help with luggage, navigating the airport, or finding accessible amenities. Many people are happy to lend a hand to make your travel experience easier.

Extra Tip:

Look for programs like TSA Cares, which offers additional support for travelers with medical conditions or disabilities.

Traveling with Confidence and Joy

As you prepare for the holiday season, remember that thoughtful planning and a flexible mindset can help make travel more enjoyable for everyone. Dr. Siambanes and the team at Children’s Cerebral Palsy are dedicated to supporting families year-round, helping children with cerebral palsy gain greater independence and mobility through specialized orthopedic care. 

We wish you safe travels and a joyful holiday season filled with special moments together.

Holiday Travel Tips for Kids with Cerebral Palsy
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Gift Ideas for Children With Cerebral Palsy

 

With the gift-giving season on the horizon, you might be wondering what types of gifts to purchase for children with Cerebral Palsy.

The Children’s Cerebral Palsy Treatment Center has plenty of answers for all of your gift-giving questions.

Like any gift, it is important that the gift you give to a child with Cerebral Palsy is age-appropriate, matches the child’s developmental stage, and is something that matches the child’s interest. So, if a child for whom you are buying a gift likes animals, get them something related to animals.

Gifts ideas for children with Cerebral Palsy include:

  • Fidget toys that might help strengthen grip
  • Fold and Go trampolines that might help improve balance and leg strength
    • Find a trampoline with a safety rail for extra security.
  • An indoor therapy swing that might help with balance, muscle building, and fine motor skill development
  • Magnetic building blocks, which are a substitute for building block toys that make building easier for children with a lack of fine motor skills
  • Flashcard games for children with special needs
    • A common flashcard game for children with Cerebral Palsy is Feelings in a Flash, which teaches children to identify their emotions and increases their emotional intelligence
  • It is important for children with Cerebral Palsy to socialize, so any gifts that encourage socialization

There are some gifts that we should avoid purchasing for children with Cerebral Palsy.

Gifts that overstimulate the child, particularly if the child has a sensitivity to bright lights or loud noises, should be avoided.

So should toys that require fine motor skills, which the child may not have. Such toys can be frustrating for a child with Cerebral Palsy, and they might not get enjoyment out of playing with a toy that requires such motor skills.

It may take a little bit of extra care, but you can brighten a child’s holiday season with the right gift.

The team at the Children’s Cerebral Palsy Treatment Center wishes you and yours a joyous holiday season!

Gift Ideas for Children With Cerebral Palsy
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Preparing Children With Scoliosis for Cold Weather Months

Children with scoliosis and Cerebral Palsy already have a difficult time regulating their body temperature, and
cold weather can bring some negative symptoms. In most cases, the hypothalamus is often
damaged with Cerebral Palsy, which might result in autonomic nervous system dysfunction. It is
important to be highly prepared for the beginning of winter weather with any type of Cerebral
Palsy to reduce any negative symptoms that may arise.

The Autonomic Nervous System & Hypothalamus

Since the hypothalamus may be damaged in children with scoliosis and Cerebral Palsy, children may experience body dysfunction and other organ-related disorders/diseases. When the weather is cold, the hypothalamus will sense it and send signals to the muscles that make a person shiver, creating warmth. Children with scoliosis and Cerebral Palsy might not have this basic function because of the potentially damaged hypothalamus and autonomic nervous system. The hypothalamus might also signal the brain to constrict blood vessels to prevent heat loss, but in children with Cerebral Palsy, this might also not be possible.

Preparing for Winter Weather Conditions

Keeping the body warm is essential, and traveling with additional winter clothing can cut down the possibilities of negative symptoms associated with freezing conditions. Sizing up in clothing can also make it simple to layer on top of braces and Velcro straps, making them easier to remove. If residing in a place with frequent or excessive snowfall, it might help to invest in wheelchair tires with extra traction and reinforce ramps. Colder weather affects muscle movements and spasms as well, so acquiring wearable safety materials is imperative.

Other ways to combat weather conditions may include:
– Drinking or eating something warm/cool
– Maintaining heat/air sources in the home and vehicle
– Dress appropriately for current conditions
– Warm or cool baths
– Bring warm or cool water bottles
– Travel with extra essential items in case of emergency
– Medical equipment, blankets, thermal winter clothing, warm/cold compressions
– Stretch muscles often in a safe way to avoid stiffness or spasms

This may feel overwhelming at first, but you will be better prepared for many weather-related situations. Be sure to monitor children closely and be aware of any signs or symptoms of hypothermia or heat stroke. By staying prepared for any weather conditions, your family can maintain a comfortable and regular routine while minimizing any weather-related complications.

 

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Back-to-School Tips for 2022

Parents and children already endure an incredible number of challenges when it comes to education, and the pandemic added to those challenges. Schools around the world put COVID-19 protocols in place for the foreseeable future and special education facilities have increased the protection of their students returning back to school. 

These new changes can be a struggle for students and teachers, especially those with special needs and coexisting conditions, including cerebral palsy. Now that learning is back to in-person, students with disabilities can return to regular socialization and access to vital resources. 

Common challenges associated with remote learning for children with disabilities include taking those children out of their regular routines and dramatically reducing one-on-one learning and in-person socialization with students in the classroom.

Just as the pandemic brought challenges, there were also many brilliant new ideas that came to fruition. Many different resources helped students during these times, and they can still be used in the classroom, enhancing their digital learning experience. When we factor in-person learning into their daily routine, these tips can be crucial for a positive learning experience.

Dr. Siambanes asks parents of children with cerebral palsy to consider including the following items in their child’s in-person learning checklist:

  • Make sure any items your child needs are packed ahead of time (assistive devices, adaptive equipment, etc.)
  • Pack extra face masks and hand sanitizer
  • Review the school calendar daily, monitoring any changes to the schedule
  • Know your child’s educational team thoroughly, and keep in contact with them
  • Ask for assistance if you are unsure of new protocols

When ensuring educational success, it is critical to take important changes and specialty programs into account. Make sure to stay in contact with the recommended professionals, while writing down all your questions, concerns, and needs.

Returning to school can be nerve-wracking for the parent and child, especially when factoring in COVID-19. This has been a difficult time for many and understanding the resources you and your child have at school is very important. Transitional changes can be navigated with the right help from your child’s educational team. 

If you or your child begin feeling overwhelmed or stressed, understand there are people on the special education team for that reason. Many teachers are happy to help and have prior experience with these feelings. It is always okay to reach out for help.

It is important to monitor your child’s feelings and behaviors to identify potential issues, including:

  • Behavioral changes
  • Grade changes
  • Developmental changes
  • Emotional changes

While this may seem like a lot to digest, you will be better prepared for situations that arise. Problems may occur, but you can rest assured that you and your child’s educational team can navigate these problems together. 

By having a strong support system in your child’s family life and educational life, you can learn how to set your child up for success. Many of these things can help your student begin to realize that they can do anything they set their mind to, the opportunities are limitless.

Back-to-School Tips for 2022
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How swimming can help kids with cerebral palsy beat the summer heat, play with friends and improve their overall health

Children with cerebral palsy do not have to be excluded from summer fun with friends and family, and one way to get the kids in the neighborhood together for an inclusive activity is to go swimming. After all, who doesn’t love swimming in the dog days of summer? 

Children with CP can greatly benefit from swimming with proper supervision by a caregiver or therapist, and with flotation devices, if necessary.

“Because we are more buoyant in water, the effects of gravity decline, providing ideal conditions for those with cerebral palsy to stretch and extend muscles and joints with less resistance than one would experience out of the water,” said Dr. David Siambanes, founder of Children’s Cerebral Palsy. “More freedom of movement when swimming means a larger range of motion that can actually help those with CP make progress in their maneuverability.” 

Swimming also has fantastic rehabilitative qualities for those with CP. A study by the National Institute of Health (NIH) showed that for children ages five through 13 with CP who swam for two hours per week gained gross motor function in just six weeks. 

Children with CP also benefit from the overall health effects of swimming, which is a cardiovascular workout that also builds muscle strength. 

Through swimming and other physical activities, kids with CP — and all of us — can improve metabolic rates, increase blood circulation and joint range of motion, improve bone density, fend off anxiety and stress, and boost our energy levels. 

For more information on swimming and other physical activities that can benefit those with Cerebral Palsy, contact Children’s Cerebral Palsy today! 

How swimming can help kids with cerebral palsy beat the summer heat, play with friends and improve their overall health
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