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Inclusive Halloween Tips For Children With CP

Halloween is a special time of year where children can do costumes, take on the persona of their heroes, and venture through their neighborhood in search of the highest quality of sweets. For children with cerebral palsy (CP), however, this can be a time where certain traditions are difficult to participate in due to lack of accessibility. To remedy this, Dr. David Siambanes, pediatric orthopedist and founder of Children’s Cerebral Palsy (CCP), is offering Halloween tips on how they can make their stop inclusive for children with CP.

“Every kid with disabilities deserves the opportunity to experience Halloween like everyone else, which takes some consideration and initiative among members of their community,” said Siambanes, a board-certified and fellowship-trained spine surgeon. “A few simple tricks can really make kids with CP feel included in the holiday festivities.”

Dr. Siambanes suggests those expecting trick-or-treaters to take the following Halloween tips to make their home more accessible to children with CP:

  • Keep on outdoor lights. Humps or gaps in the sidewalk can make navigating a path especially tricky for those in wheelchairs or requiring crutches. Bright lights and a well-lit pathway can make the trip to the front porch much easier.
  • Clear a path. Make sure the pathway leading to your candy depository is clear of objects and barriers. Try to make the walkway wide enough for children who require walking devices. 
  • Meet at the street. If your house has stairs and is without a ramp, consider meeting trick-or-treaters at the curb or put your treat basket at the bottom of the stairs so every child can have access to it.
  • Include toys with treats. Approximately 30–40% of children with CP have difficulty eating and have dietary restrictions. Consider including toys and non-edible playthings as items to be handed out to make sure children with dietary restrictions have something to take home.
  • Don’t point out a child’s disability. While having CP is nothing to be ashamed of, children with CP respond positively to being treated like everyone else. You may find a child who is struggling to walk up the stairs to be brave and strong, but try not to single them out or comment on their struggle, even if the comment is positive. While it’s appropriate to tell them they did a great job, be sure to comment on their costume choice, their amount of candy or anything that doesn’t draw attention to their disability.

Halloween is a perfect time of year to help address and change stigmas associated with children with CP. Dr. Siambanes encourages parents to talk with their children, friends, and neighbors about the importance of making holidays like Halloween fun and inclusive for everyone, including those with disabilities. Taking the initiative to be more inclusive during Halloween can inspire others to be just as mindful throughout the year. 

Inclusive Halloween Tips For Children With CP
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Back-to-School Tips for 2022

Parents and children already endure an incredible number of challenges when it comes to education, and the pandemic added to those challenges. Schools around the world put COVID-19 protocols in place for the foreseeable future and special education facilities have increased the protection of their students returning back to school. 

These new changes can be a struggle for students and teachers, especially those with special needs and coexisting conditions, including cerebral palsy. Now that learning is back to in-person, students with disabilities can return to regular socialization and access to vital resources. 

Common challenges associated with remote learning for children with disabilities include taking those children out of their regular routines and dramatically reducing one-on-one learning and in-person socialization with students in the classroom.

Just as the pandemic brought challenges, there were also many brilliant new ideas that came to fruition. Many different resources helped students during these times, and they can still be used in the classroom, enhancing their digital learning experience. When we factor in-person learning into their daily routine, these tips can be crucial for a positive learning experience.

Dr. Siambanes asks parents of children with cerebral palsy to consider including the following items in their child’s in-person learning checklist:

  • Make sure any items your child needs are packed ahead of time (assistive devices, adaptive equipment, etc.)
  • Pack extra face masks and hand sanitizer
  • Review the school calendar daily, monitoring any changes to the schedule
  • Know your child’s educational team thoroughly, and keep in contact with them
  • Ask for assistance if you are unsure of new protocols

When ensuring educational success, it is critical to take important changes and specialty programs into account. Make sure to stay in contact with the recommended professionals, while writing down all your questions, concerns, and needs.

Returning to school can be nerve-wracking for the parent and child, especially when factoring in COVID-19. This has been a difficult time for many and understanding the resources you and your child have at school is very important. Transitional changes can be navigated with the right help from your child’s educational team. 

If you or your child begin feeling overwhelmed or stressed, understand there are people on the special education team for that reason. Many teachers are happy to help and have prior experience with these feelings. It is always okay to reach out for help.

It is important to monitor your child’s feelings and behaviors to identify potential issues, including:

  • Behavioral changes
  • Grade changes
  • Developmental changes
  • Emotional changes

While this may seem like a lot to digest, you will be better prepared for situations that arise. Problems may occur, but you can rest assured that you and your child’s educational team can navigate these problems together. 

By having a strong support system in your child’s family life and educational life, you can learn how to set your child up for success. Many of these things can help your student begin to realize that they can do anything they set their mind to, the opportunities are limitless.

Back-to-School Tips for 2022
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How swimming can help kids with cerebral palsy beat the summer heat, play with friends and improve their overall health

Children with cerebral palsy do not have to be excluded from summer fun with friends and family, and one way to get the kids in the neighborhood together for an inclusive activity is to go swimming. After all, who doesn’t love swimming in the dog days of summer? 

Children with CP can greatly benefit from swimming with proper supervision by a caregiver or therapist, and with flotation devices, if necessary.

“Because we are more buoyant in water, the effects of gravity decline, providing ideal conditions for those with cerebral palsy to stretch and extend muscles and joints with less resistance than one would experience out of the water,” said Dr. David Siambanes, founder of Children’s Cerebral Palsy. “More freedom of movement when swimming means a larger range of motion that can actually help those with CP make progress in their maneuverability.” 

Swimming also has fantastic rehabilitative qualities for those with CP. A study by the National Institute of Health (NIH) showed that for children ages five through 13 with CP who swam for two hours per week gained gross motor function in just six weeks. 

Children with CP also benefit from the overall health effects of swimming, which is a cardiovascular workout that also builds muscle strength. 

Through swimming and other physical activities, kids with CP — and all of us — can improve metabolic rates, increase blood circulation and joint range of motion, improve bone density, fend off anxiety and stress, and boost our energy levels. 

For more information on swimming and other physical activities that can benefit those with Cerebral Palsy, contact Children’s Cerebral Palsy today! 

How swimming can help kids with cerebral palsy beat the summer heat, play with friends and improve their overall health
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Ways New Assistive Technology Can Assist Your Child with CP

Assistive technology is any device — electronic or not — that helps maintain, increase or improve functional living for individuals with a disability or impairment. With technological advances happening rapidly, they can be modified and applied to those living with disabilities, as well. These new technologies can improve communication, mobility, learning capabilities and hearing. By using these devices, families can better help their children at home, in school, and during fun activities.

New Assistive Technology at Home 

Some aspects of home life can be difficult when someone in the family lives with cerebral palsy. It is important to utilize the components that work for you and your family and eliminate those that don’t. Family members with disabilities can face a number of unique challenges, and the following devices can be utilized to make life a bit easier:

  • Plates and bowls with non-slip bottoms
  • Adaptive scissors and art supplies
  • Non-skid rugs
  • Automated assistive devices
  • Automated tables and chairs
  • Specialized bathroom devices to encourage independence and confidence

New Assistive Technology in School Environments

Many special education schools and teachers form an Individualized Education Plan for each student. These plans can include assistive devices tailored to the needs of the student. These devices can include:

  • Vision aids – magnifying sheets to assist in reading, as well as text-to-speech programs on computers that can read words aloud for children with hearing challenges.
  • Communication devices – some devices can help a child choose words, letters, or pictures to convey what he or she wants to say. There is also eye-tracking software that helps the user select the appropriate items.
  • Transportation aids – these devices can consist of wheelchairs or powered scooters that can further help a child with their movement in school and beyond.

Overall, assistive technology can be used universally. It is important to include everyone in these new ideas that come into society so that anyone who is interested can get involved. Equal opportunities are crucial for everyone, and children who have Cerebral Palsy can have a difficult time participating in things. By removing these barriers, these children can have the same opportunity! They can thrive and break through social, physical, and cultural stereotypes. By using assistive technology, parents can set their children up for success. Children with Cerebral Palsy can and do have brilliant futures ahead.

 

Ways New Assistive Technology Can Assist Your Child with CP
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Dr. David Siambanes Emphasizes Mental Health Awareness Month

As May marks Mental Health Awareness Month, Dr. David Siambanes, founder of Children’s Cerebral Palsy, is shedding light on the importance of mental health and how it translates to overall wellbeing for those with cerebral palsy (CP), as well as sharing tips on what those living with CP can do to improve their mental wellbeing. 

The most common mental health disorders are anxiety and depression, with about 46 percent of children reporting they deal with anxiety. According to the Cerebral Palsy Research Network, those with CP struggle with mental health issues more than their able-bodied counterparts because of the physical stress, social difficulties and other concerns. Because of the physical ailments children with CP sometimes face, their mental health can be overlooked. 

Those who have CP may experience mental health issues due to physical ailments such as pain, fatigue or dietary problems. Some children with CP also face issues with socializing, including limited interactions, restrictions on activities, education and family or relationship issues.

In recognition of Mental Health Awareness Month, Dr. Siambanes wants to address the importance of mental health in CP patients by sharing general tips on how to improve one’s mental wellbeing:

  • Change of Environment. Going outside and staying active benefits both physical and mental health. This allows you to be involved in competitions or set goals to feel a sense of satisfaction.
  • Socialize. Being around others can help distract you and boost your overall mood. Be sure to stay connected with family and friends to build relationships and share experiences with others. 
  • Therapy. Going to a therapist and talking about your feelings will help determine and may solve why you are feeling unwell. Sometimes, it can be difficult to discuss this topic with someone you know. Therapy is a good way to connect with someone and build a relationship that allows you to solve these problems.

Siambanes emphasizes to his patients that positive mental health is vital for overall physical wellbeing. If you or someone you know is struggling to deal with mental health issues, reach out to them and see if consulting a doctor is the next proper course of action. If you have any questions about mental health for those living with cerebral palsy, contact us today.

Dr. David Siambanes Emphasizes Mental Health Awareness Month
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Staying Active With Cerebral Palsy During Move More Month

The American Heart Association (AHA) has deemed April to be Move More Month, a time of year that encourages people to become more active to improve mental and physical health.

Dr. David Siambanes, a board-certified orthopedic surgeon, wants to connect Move More Month to those with cerebral palsy (CP). CP affects someone’s balance, muscles and mobility, making walking and other physical activities more challenging. Often, people with CP are assisted by a walking device to help them maintain balance. Staying active and mobile is highly recommended to those with CP because it will strengthen their muscles and joints, as well as improve their walking ability, making Move More Month significant for CP patients.  

April is the first sign of spring, meaning the weather is getting warmer, and people begin participating in outdoor activities. Dr. Siambanes acknowledges being active inside is difficult and staying indoors may cause mental detriments. As the temperatures are rising, it is vital to get outside.  

Dr. Siambanes is sharing some helpful tips with those living with CP on how to stay active outside and take advantage of Move More Month.  

  • Take a Walk. This can always benefit mental and physical health, and Dr. Siambanes highly recommends taking 20-30 minutes each day to go for a stroll.
  • Swimming. If it is warm enough outside, swimming is always an excellent way to exercise your muscles, as people weigh less in water, which allows for easier movement. Swimming for recreational purposes or doing water exercises helps to strengthen muscles and joints. If an adult supervisor accompanies them, those with CP should make swimming a somewhat regular activity. 
  • Play Sports. Outdoor or indoor sports are a way to stay active and practice muscle movement and agility while also fine-tuning motor skills. Dr. Siambanes recommends finding peers and getting involved in sports to help stay active and make new friends. 
  • Have a Picnic. Dr. Siambanes believes picnics are another activity that helps with mental and physical wellbeing, as it allows CP patients to be outside and relax while eating with a family member or friend. 

Dr. Siambanes insists that being active is highly beneficial to mental and physical health, especially during Move More Month. He wants to encourage those living with CP to be more active, especially as spring is arriving and the weather is warmer.  

If you are concerned about any of these activities or have any general questions about how your child can participate in activities that are appropriate for them, please contact Children’s Cerebral Palsy today. 

Staying Active With Cerebral Palsy During Move More Month
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Protecting Cerebral Palsy Children from Omicron Variant

The COVID-19 Omicron variant has been rapidly spreading and affecting children, especially those who are being hospitalized. This variant is highly contagious and spreading quickly, which is a serious factor for the families that have a child with cerebral palsy (CP).  

A major concern for parents or caregivers of children who suffer with CP is the COVID-19 pandemic and the new Omicron variant. Families have stopped their extracurricular activities, limited the guests that are welcomed in their home and fear that their lives are never going to become normal again. Most parents are more distressed over the fact that their children won’t be able to live to their full potential. 

Throughout the pandemic, especially now with the second surge of the Omicron variant, children with CP haven’t been able to communicate or gather with other children. They have only attended online school, and in reality, they only leave their house for doctor’s appointments. People fear this is affecting their children’s mental health and sociability. 

It is recommended to continue wearing a mask in any public facility, especially parents that have to go to work, visit the grocery store or run other immediate errands. This will be beneficial to your own health and your child’s when returning home. It is highly valuable to keep the home of someone who suffers CP extremely safe and clean. 

Mental health is a serious concern throughout the pandemic and in particular, children with CP who have been restricted from returning to normal activities due to the new variant . Dr Siambanes has provided helpful tips on improving a child’s mental health of those who suffer from cerebral palsy throughout the pandemic.

  • Outside Activities. Going on daily walks, or meeting friends at the park can drastically improve one’s health. Time spent outdoors is vital to a child’s happiness and can instantly boost their mood. It is safe to go outside and wave to friends at the park as long as you continue to follow the regulations of remaining six feet apart.  
  • Take breaks. Staying away from phones, computers, tablets and televisions is important. Staring at screens all day can be very detrimental to a child’s mental health. Take time to relax, breathe and meditate to stay positive throughout this time. 
  • Keep up with daily care. Make sure to continue staying up to date on your child’s physical care. Dr. Siambanes recommends keeping a physical or digital calendar if they take medicine, have exercises or therapy they need to follow, or have regularly-scheduled doctor’s appointments.
  • Eat Healthy. Continuing to eat healthy can become difficult in quarantine or lockdown, but it is a key element in staying healthy because it strengthens your immune system and creates a more balanced mood. 

While these tips are a general guideline to help maintain mental and physical health, each child’s case of CP is unique and should be tailored to the individual. Those who suffer with cerebral palsy all need different medical attention so, if you notice any serious concerns please reach out to your primary care physician. If you have any other questions or concerns contact Children’s Cerebral Palsy today.

Protecting Cerebral Palsy Children from Omicron Variant
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Enjoying The Winter Season With Cerebral Palsy

With today marking the beginning of the winter season, much of the country has experienced significant drops in temperatures. Although most experience only minor inconveniences, many children with cerebral palsy must endure increased limitations, including seclusion, illnesses and bodily discomfort. With that, Children’s Cerebral Palsy is sharing different ways that children living with CP can keep warm, avoid unnecessary discomfort, and enjoy the winter season.

The first concern to address is whether or not your child is appropriately clothed for colder weather. Choose clothing that can be easily donned or taken off. Colder temperatures can lead to stiff muscles and increased soreness, which will mean less comfortable nights of sleep. Consider purchasing an electric blanket for your child to sleep with at night.

Between the drop in temperatures and enforcement of the most recent COVID-19 mandates, this can mean a lot more time at home for all kids, especially those with a disability. For children with physical limitations, this time can be extremely isolating. To help quell the boredom during these times, parents should look to plan indoor activities for their child with CP, such as cooking, crafting, gaming and other activities that focus on building muscle strength and coordination. 

Decreasing temperatures bring inevitable winter illnesses. This can be more costly when dealing with compromised immune systems or other health disorders. Ensuring your child’s medical records are up to date and listing the different medications your child takes is helpful in emergency medical situations, especially if you are traveling and can’t see your child’s primary care physician. 

Lastly, cold weather can cause your child with cerebral palsy severe discomfort through further stiffness of muscles and joints, cramping, aching and more. Depending on the symptoms, additional medical action may need to be taken. Because every case of cerebral palsy is different, it’s important for parents to be observant of their child’s symptoms. Designate time to speak with your child’s doctor about anything you’ve noticed and possible treatments or solutions to help mitigate discomfort. 

The winter season can be tough for children with cerebral palsy, but going the extra mile to ensure your child is prepared is of paramount importance. In addition to the suggestions listed above, parents should talk with their child about their winter experiences and what can be done to help improve them. If you have immediate questions or concerns about preparing your child with CP for the winter season, contact Children’s Cerebral Palsy today.

Enjoying The Winter Season With Cerebral Palsy
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Staying Active With Cerebral Palsy

Exercise regimens are extremely important for a child’s wellbeing, including for those with cerebral palsy. Although certain activities can be difficult for children with cerebral palsy, experts at Children’s Cerebral Palsy offer various activities to help kids with CP stay active. 

“It’s important for children with CP to stay active and keep moving, as this can help maintain mobility and movement for as long as possible,” said Dr. David Siambanes, a board-certified and fellowship-trained spine surgeon and founder of Children’s Cerebral Palsy. “Through innovative activities and adaptive sports, parents can help maintain their child’s mobility and health while also having fun.”

To help improve movement and overall health, Dr. Siambanes suggests giving the following exercises and activities a try for children living with CP:

    • Hydrotherapy. Exercising in water is great for children with CP because it puts less stress on muscles and joints, as well as decreases a person’s body weight by 90 percent. This allows for a wider range of motion and improves cardiovascular conditioning since the heart pumps more blood per beat when the body is submerged in water.
    • Painting. To help people with CP strengthen their motor skills, painting is a great option. Not only will working fine motor skills help them be more precise and accurate in their movements, but painting helps children with CP focus on the art they’re creating rather than the energy they’re expending.
    • Adaptive sports. For children with CP unable to participate in traditional forms of popular games and sports, adapting these activities to meet their capabilities is a perfect way to build physical strength and self-esteem. Find a sport your child is interested in and consider ways to alter the rules or goals so they can participate fully. Check out CP Sport for a list of guidelines and resources for adapting particular sports.
    • Dancing. No matter your child’s condition or movement limitations, everyone can dance to music. Dance and rhythmic auditory stimulation benefits body functions like balance, gait, walking, and cardiorespiratory fitness for individuals with cerebral palsy.
    • Photography. Photography is a great activity that stimulates many different parts of the brain. It can help kids with cerebral palsy develop spatial awareness, express themselves creatively, and gain an appreciation for the outdoors. Additionally, learning to hold, point and shoot a camera can help further develop fine motor skills. 

Because all cases of CP are not the same, it’s best to take into consideration your child’s capabilities and strengths when deciding what activity to participate in. If you have questions about what activity is most appropriate, consult with your child’s primary care provider. If you have additional questions about how to keep your child with CP healthy and active, contact Children’s Cerebral Palsy today.

Staying Active With Cerebral Palsy
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Tampa spine surgeon shares cerebral palsy pain management tips

Dr. David Siambanes, director of the Children’s Scoliosis Center at St. Joseph’s Children’s Hospital and founder of Children’s Cerebral Palsy, is educating parents of children living with cerebral palsy (CP) on effective pain management tips and various techniques and approaches for alleviating the pain associated with CP.

Before we dive into pain management tips for cerebral palsy, it is best to know what the condition is. According to the Center for Disease Control and Prevention (CDC), cerebral palsy is a group of disorders that affect a person’s ability to move and maintain balance and posture and is the most common motor disability in childhood. CP impacts a child’s ability to control their muscles, oftentimes causing pain and discomfort for the approximately 800,000 people living with CP across the U.S.

“Alleviating pain in children can have positive physical and mental impacts during critical years of development,” said Siambanes, a board-certified orthopedic surgeon who is fellowship-trained in both pediatric orthopedics and spinal deformities. “We want parents to know there are a number of different options short of surgery that can ease your child’s pain and provide an opportunity to live a more comfortable life.”

Siambanes says children with minimum pain or discomfort can relieve their symptoms by enrolling in physical and occupational therapy sessions, where a child can engage in various stretches and exercise regimens intended to improve muscle and joint flexibility. In some cases, a child with CP may have the option to be fitted with orthoses or braces designed to help support weakened muscles.

Some children with CP experience a moderate level of pain. Parents in search of a solution can turn to non- or minimally-invasive treatment options, including radiofrequency, neuromodulation or nerve ablation to target pain receptors, implanting a stimulator on the spinal cord to alter a child’s pain receptors, or injecting Botox into areas experiencing frequent muscle spasms to help numb the pain.

While surgery is considered a last resort for CP pain management, it is sometimes the only option available for children experiencing severe levels of pain. In these cases, surgical procedures generally fall into three categories:

  • Orthopaedic surgery – This procedure is recommended for children with spastic CP. Orthopaedic surgeons can increase the length of tendons and muscles in a person’s legs to make walking and moving less painful.
  • Spinal fusion – Spinal fusion procedures permanently connect two or more vertebrae, eliminating motion between them and providing stability. Spinal fusion involves techniques designed to mimic the normal healing process of broken bones and can improve a child’s organ function as they grow.
  • Selective Dorsal Rhizotomy – Selective Dorsal Rhizotomy (SDR) is a surgery done on the lower spinal cord to reduce spasticity in the legs. Certain abnormal nerve fibers that cause high muscle tone are cut. This allows the muscles to relax by identifying and sectioning only the nerve fibers that contribute to spasticity.

The most appropriate treatment depends on different factors, including a child’s stage of development and form of CP. Siambanes advises parents of children living with CP to consult their pediatric physician to determine the right option for managing their pain. If you’re a parent of a child with cerebral palsy and have questions, visit our Contact page to get in touch.

Tampa spine surgeon shares cerebral palsy pain management tips
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