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Surgical Procedures to Consider in 2023 for Children’s Cerebral Palsy

Surgical Procedures to Consider in 2023 for Children’s Cerebral Palsy

 

In the new year, you may be wondering how to alleviate the pain and increase the quality of life for a child who has Cerebral Palsy.

Fortunately, there are solutions that are worth considering in 2023. Surgery is one of those solutions.

There are two main types of surgery for Cerebral Palsy:

  • Orthopedic surgery: Children with severe contractures or deformities might benefit from surgery on bones or joints to place their arms, spine, hips or legs in their correct positions. Such surgical procedures can also lengthen muscles and lengthen or reposition tendons that are shortened by contractures. These corrections can lessen pain and improve mobility for children with Cerebral Palsy. The procedures can also make it easier to use other tools for combatting Cerebral Palsy, like a walker, braces or crutches.
  • Cutting nerve fibers (selective dorsal rhizotomy): In severe cases of Cerebral Palsy, when other treatments haven’t helped, surgeons can perform a procedure that involves cutting the nerves serving specific spastic muscles, called selective dorsal rhizotomy. This procedure can help relax the muscles in the legs and reduces pain.

Without surgery, there are other options to consider for a pain-free 2023, too.

For example, physical therapy can help a child’s strength, flexibility, balance, motor development and mobility, and occupation therapy can help your child gain independence in daily activities and routines. The latter can help improve your child’s use of walkers, wide-based canes, standing and seating systems, or electric wheelchairs.

For more information on surgical procedures for treating Cerebral Palsy, click here.

 

January 12, 2023
Surgical Procedures to Consider in 2023 for Children’s Cerebral Palsy
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Gift Ideas for Children With Cerebral Palsy

Gift Ideas for Children With Cerebral Palsy

 

With the gift-giving season on the horizon, you might be wondering what types of gifts to purchase for a loved one with Cerebral Palsy.

The Children’s Cerebral Palsy Treatment Center has plenty of answers for all of your gift-giving questions.

Like any gift, it is important that the gift you give to a child with Cerebral Palsy is age appropriate, matches the child’s developmental stage, and is something that matches with the child’s interest. So, if a child for whom you are buying a gift likes animals, get them something related to animals.

Gifts ideas for children with Cerebral Palsy include:

  • Fidget toys that might help strengthen grip
  • Fold and Go trampolines that might help improve balance and leg strength
    • Find a trampoline with a safety rail for extra security.
  • An indoor therapy swing that might help with balance, muscle building, and fine motor skill development
  • Magnetic building blocks, which are a substitute for building block toys that make building easier for children with a lack of fine motor skills
  • Flashcard games for children with special needs
    • A common flashcard game for children with Cerebral Palsy is Feelings in a Flash, which teaches children to identify their emotions and increases their emotional intelligence
  • It is important for children with Cerebral Palsy to socialize, so any gifts that encourage socialization

There are some gifts that we should avoid purchasing for children with Cerebral Palsy.

Gifts that overstimulate the child, particularly if the child has sensitivity to bright lights or loud noises, should be avoided.

So should toys that require fine motor skills, which the child may not have. Such toys can be frustrating for a child with Cerebral Palsy, and they might not get enjoyment out of playing with a toy that requires such motor skills.

It may take a little bit of extra care, but you can brighten a child’s holiday season with the right gift.

The team at the Children’s Cerebral Palsy Treatment Center wish you and yours a joyous holiday season!

December 15, 2022 ,
Gift Ideas for Children With Cerebral Palsy
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Preparing Children with Scoliosis for Cold Weather Months

Preparing Children with Scoliosis for Cold Weather Months

Children with cerebral palsy already have a difficult time regulating their body temperature, and
cold weather can bring some negative symptoms. In most cases, the hypothalamus is often
damaged with cerebral palsy, which might result in autonomic nervous system dysfunction. It is
important to be highly prepared for the beginning of winter weather with any type of cerebral
palsy to reduce any negative symptoms that may arise.

The Autonomic Nervous System & Hypothalamus

Since the hypothalamus may be damaged in children with cerebral palsy, children may experience body dysfunction and other organ-related disorders/diseases. When the weather is cold, the hypothalamus will sense it and send signals to the muscles that make a person shiver, creating warmth. Children with cerebral palsy might not have this basic function because of the potentially damaged hypothalamus and autonomic nervous system. The hypothalamus might also signal the brain to constrict blood vessels to prevent heat loss, but in children with cerebral palsy, this might also not be possible.

Preparing for Winter Weather Conditions

Keeping the body warm is essential, and traveling with additional winter clothing can cut down the possibilities of negative symptoms associated with freezing conditions. Sizing up in clothing can also make it simple to layer on top of braces and Velcro straps, making them easier to remove. If residing in a place with frequent or excessive snowfall, it might help to invest in wheelchair tires with extra traction and reinforce ramps. Colder weather affects muscle movements and spasms as well, so acquiring wearable safety materials is imperative.

Other ways to combat weather conditions may include:
– Drinking or eating something warm/cool
– Maintaining heat/air sources in the home and vehicle
– Dress appropriately for current conditions
– Warm or cool baths
– Bring warm or cool water bottles
– Travel with extra essential items in case of emergency
– Medical equipment, blankets, thermal winter clothing, warm/cold compressions
– Stretch muscles often in a safe way to avoid stiffness or spasms

This may feel overwhelming at first, but you will be better prepared for many weather-related situations. Be sure to monitor children closely, and be aware of any signs or symptoms of hypothermia or heat stroke. By staying prepared for any weather conditions, your family can maintain a comfortable and regular routine while minimizing any weather-related complications.

 

November 1, 2022 ,
Preparing Children with Scoliosis for Cold Weather Months
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Children’s Cerebral Palsy founder shares tips on how to be CP-inclusive this Halloween

Children’s Cerebral Palsy founder shares tips on how to be CP-inclusive this Halloween

Halloween is a special time of year where children can don costumes, take on the persona of their heroes, and venture through their neighborhood in search of the highest quality of sweets. For children with cerebral palsy (CP), however, this can be a time where certain traditions are difficult to participate in due to lack of accessibility. To remedy this, Dr. David Siambanes, pediatric orthopedist and founder of Children’s Cerebral Palsy (CCP), is offering Halloween hosters tips on how they can make their stop inclusive for children with CP.

“Every kid with disabilities deserves the opportunity to experience Halloween like everyone else, which takes some consideration and initiative among members of their community,” said Siambanes, a board-certified and fellowship-trained spine surgeon. “A few simple tricks can really make kids with CP feel included in the holiday festivities.”

Dr. Siambanes suggests those expecting trick-or-treaters to take the following measures to make their home more accessible to children with CP:

  • Keep on outdoor lights. Humps or gaps in the sidewalk can make navigating a path especially tricky for those in wheelchairs or requiring crutches. Bright lights and a well-lit pathway can make the trip to the front porch much easier.
  • Clear a path. Make sure the pathway leading to your candy depository is clear of objects and barriers. Try to make the walkway wide enough for children who require walking devices. 
  • Meet at the street. If your house has stairs and is without a ramp, consider meeting trick-or-treaters at the curb or put your treat basket at the bottom of the stairs so every child can have access to it.
  • Include toys with treats. Approximately 30–40% of children with CP have difficulty eating and have dietary restrictions. Consider including toys and non-edible playthings as items to be handed out to make sure children with dietary restrictions have something to take home.
  • Don’t point out a child’s disability. While having CP is nothing to be ashamed of, children with CP respond positively to being treated like everyone else. You may find a child who is struggling to walk up the stairs to be brave and strong, but try not to single them out or comment on their struggle, even if the comment is positive. While it’s appropriate to tell them they did a great job, be sure to comment on their costume choice, their amount of candy or anything that doesn’t draw attention to their disability.

Halloween is a perfect time of year to help address and change stigmas associated with children with CP. Dr. Siambanes encourages parents to talk with their children, friends, and neighbors about the importance of making holidays like Halloween fun and inclusive for everyone, including those with disabilities. Taking the initiative to be more inclusive during Halloween can inspire others to be just as mindful throughout the year. 

October 10, 2022
Children’s Cerebral Palsy founder shares tips on how to be CP-inclusive this Halloween
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Back-to-School Tips for 2022

Back-to-School Tips for 2022

Parents and children already endure an incredible number of challenges when it comes to education, and the pandemic added to those challenges. Schools around the world put COVID-19 protocols in place for the foreseeable future and special education facilities have increased the protection of their students returning back to school. 

These new changes can be a struggle for students and teachers, especially those with special needs and coexisting conditions, including cerebral palsy. Now that learning is back to in-person, students with disabilities can return to regular socialization and access to vital resources. 

Common challenges associated with remote learning for children with disabilities include taking those children out of their regular routines and dramatically reducing one-on-one learning and in-person socialization with students in the classroom.

Just as the pandemic brought challenges, there were also many brilliant new ideas that came to fruition. Many different resources helped students during these times, and they can still be used in the classroom, enhancing their digital learning experience. When we factor in-person learning into their daily routine, these tips can be crucial for a positive learning experience.

Dr. Siambanes asks parents of children with cerebral palsy to consider including the following items in their child’s in-person learning checklist:

  • Make sure any items your child needs are packed ahead of time (assistive devices, adaptive equipment, etc.)
  • Pack extra face masks and hand sanitizer
  • Review the school calendar daily, monitoring any changes to the schedule
  • Know your child’s educational team thoroughly, and keep in contact with them
  • Ask for assistance if you are unsure of new protocols

When ensuring educational success, it is critical to take important changes and specialty programs into account. Make sure to stay in contact with the recommended professionals, while writing down all your questions, concerns, and needs.

Returning to school can be nerve-wracking for the parent and child, especially when factoring in COVID-19. This has been a difficult time for many and understanding the resources you and your child have at school is very important. Transitional changes can be navigated with the right help from your child’s educational team. 

If you or your child begin feeling overwhelmed or stressed, understand there are people on the special education team for that reason. Many teachers are happy to help and have prior experience with these feelings. It is always okay to reach out for help.

It is important to monitor your child’s feelings and behaviors to identify potential issues, including:

  • Behavioral changes
  • Grade changes
  • Developmental changes
  • Emotional changes

While this may seem like a lot to digest, you will be better prepared for situations that arise. Problems may occur, but you can rest assured that you and your child’s educational team can navigate these problems together. 

By having a strong support system in your child’s family life and educational life, you can learn how to set your child up for success. Many of these things can help your student begin to realize that they can do anything they set their mind to, the opportunities are limitless.

September 5, 2022 , ,
Back-to-School Tips for 2022
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How swimming can help kids with cerebral palsy beat the summer heat, play with friends and improve their overall health

How swimming can help kids with cerebral palsy beat the summer heat, play with friends and improve their overall health

Children with cerebral palsy do not have to be excluded from summer fun with friends and family, and one way to get the kids in the neighborhood together for an inclusive activity is to go swimming. After all, who doesn’t love swimming in the dog days of summer? 

Children with CP can greatly benefit from swimming with proper supervision by a caregiver or therapist, and with flotation devices, if necessary.

“Because we are more buoyant in water, the effects of gravity decline, providing ideal conditions for those with cerebral palsy to stretch and extend muscles and joints with less resistance than one would experience out of the water,” said Dr. David Siambanes, founder of Children’s Cerebral Palsy. “More freedom of movement when swimming means a larger range of motion that can actually help those with CP make progress in their maneuverability.” 

Swimming also has fantastic rehabilitative qualities for those with CP. A study by the National Institute of Health (NIH) showed that for children ages five through 13 with CP who swam for two hours per week gained gross motor function in just six weeks. 

Children with CP also benefit from the overall health effects of swimming, which is a cardiovascular workout that also builds muscle strength. 

Through swimming and other physical activities, kids with CP — and all of us — can improve metabolic rates, increase blood circulation and joint range of motion, improve bone density, fend off anxiety and stress, and boost our energy levels. 

For more information on swimming and other physical activities that can benefit those with Cerebral Palsy, contact Children’s Cerebral Palsy today! 

August 8, 2022 ,
How swimming can help kids with cerebral palsy beat the summer heat, play with friends and improve their overall health
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Ways New Technology Can Assist Your Child with CP

Ways New Technology Can Assist Your Child with CP

Assistive technology is any device — electronic or not — that helps maintain, increase or improve functional living for individuals with a disability or impairment. With technological advances happening rapidly, they can be modified and applied to those living with disabilities, as well. These new technologies can improve communication, mobility, learning capabilities and hearing. By using these devices, families can better help their children at home, in school, and during fun activities.

New Technology at Home 

Some aspects of home life can be difficult when someone in the family lives with cerebral palsy. It is important to utilize the components that work for you and your family and eliminate those that don’t. Family members with disabilities can face a number of unique challenges, and the following devices can be utilized to make life a bit easier:

  • Plates and bowls with non-slip bottoms
  • Adaptive scissors and art supplies
  • Non-skid rugs
  • Automated assistive devices
  • Automated tables and chairs
  • Specialized bathroom devices to encourage independence and confidence

New Technology in School Environments

Many special education schools and teachers form an Individualized Education Plan for each student. These plans can include assistive devices tailored to the needs of the student. These devices can include:

  • Vision aids – magnifying sheets to assist in reading, as well as text-to-speech programs on computers that can read words aloud for children with hearing challenges.
  • Communication devices – some devices can help a child choose words, letters, or pictures to convey what he or she wants to say. There is also eye-tracking software that helps the user select the appropriate items.
  • Transportation aids – these devices can consist of wheelchairs or powered scooters that can further help a child with their movement in school and beyond.

Overall, assistive technology can be used universally. It is important to include everyone in these new ideas that come into society so that anyone who is interested can get involved. Equal opportunities are crucial for everyone, and children who have Cerebral Palsy can have a difficult time participating in things. By removing these barriers, these children can have the same opportunity! They can thrive and break through social, physical, and cultural stereotypes. By using assistive technology, parents can set their children up for success. Children with Cerebral Palsy can, and do, have brilliant futures ahead.

 

July 11, 2022 , ,
Ways New Technology Can Assist Your Child with CP
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Founder of Children’s Cerebral Palsy highlights the importance of Mental Health Awareness Month

Founder of Children’s Cerebral Palsy highlights the importance of Mental Health Awareness Month

As May marks Mental Health Awareness Month, Dr. David Siambanes, founder of Children’s Cerebral Palsy is shedding light on the importance of mental health and how it translates to overall wellbeing for those with cerebral palsy (CP), as well as sharing tips on what those living with CP can do to improve their mental wellbeing. 

The most common mental health disorders are anxiety and depression, with about 46 percent of children reporting they deal with anxiety. According to the Cerebral Palsy Research Network, those with CP struggle with mental health issues more than their able-bodied counterparts because of the physical stress, social difficulties and other concerns. Because of the physical ailments children with CP sometimes face, their mental health can be overlooked. 

Those who have CP may experience mental health issues due to physical ailments such as pain, fatigue or dietary problems. Some children with CP also face issues with socializing, including limited interactions, restrictions on activities, education and family or relationship issues.

In recognition of Mental Health Awareness Month, Dr. Siambanes wants to address the importance of mental health in CP patients by sharing general tips on how to improve one’s mental wellbeing:

  • Change of Environment. Going outside and staying active benefits both physical and mental health. This allows you to be involved in competitions or set goals to feel a sense of satisfaction.
  • Socialize. Being around others can help distract you and boost your overall mood. Be sure to stay connected with family and friends to build relationships and share experiences with others. 
  • Therapy. Going to a therapist and talking about your feelings will help determine and may solve why you are feeling unwell. Sometimes it can be difficult to discuss this topic with someone you know, therapy is a good way to connect with someone and build a relationship that allows you to solve these problems.

Siambanes emphasizes to his patients that positive mental health is vital for overall physical wellbeing. If you or someone you know is struggling to deal with mental health issues, reach out to them and see if consulting a doctor is the next proper course of action. If you have any questions about mental health for those living with cerebral palsy, contact us today.

May 5, 2022
Founder of Children’s Cerebral Palsy highlights the importance of Mental Health Awareness Month
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Staying active with cerebral palsy during Move More Month

Staying active with cerebral palsy during Move More Month

The American Heart Association (AHA) has deemed April to be Move More Month, a time of yearthat encourages people to become more active to improve mental and physical health.

Dr. David Siambanes, a board-certified orthopedic surgeon, wants to connect Move More Month to those with cerebral palsy (CP). CP affects someone’s balance, muscles and mobility, making walking and other physical activities more challenging. Often, people with CP are assisted by a walking device to help them maintain balance. Staying active and mobile is highly recommended to those with CP because it will strengthen their muscles and joints, as well as improve their walking ability, making Move More Month significant for CP patients.  

April is the first sign of spring, meaning the weather is getting warmer and people begin participating in outdoor activities. Dr. Siambanes acknowledges being active inside is difficult and staying indoors may cause mental detriments. As the temperatures are rising, it is vital to get outside.  

Dr. Siambanes is sharing some helpful tips with those living with CP on how to stay active outside and take advantage of Move More Month.  

  • Take a Walk. This can always benefit mental and physical health, and Dr. Siambanes highly recommends taking 20-30 minutes each day to go for a stroll.
  • Swimming. If it is warm enough outside, swimming is always an excellent way to exercise your muscles, as people weigh less in water, which allows for easier movement. Swimming for recreational purposes or doing water exercises helps to strengthen muscles and joints. If an adult supervisor accompanies them, those with CP should make swimming a somewhat regular activity. 
  • Play Sports. Outdoor or indoor sports are a way to stay active and practice muscle movement and agility, while also fine-tuning motor skills. Dr. Siambanes recommends finding peers and getting involved in sports to help stay active and make new friends. 
  • Have a Picnic. Dr. Siambanes believes picnics are another activity that help with mental and physical wellbeing, as it allows CP patients to be outside and relax while eating with a family member or friend. 

Dr. Siambanes insists that being active is highly beneficial to mental and physical health, especially during Move More Month. He wants to encourage those living with CP to be more active, especially as spring is arriving and the weather is warmer.  

If you are concerned about any of these activities or have any general questions about how your child can participate in activites that are appropriate for them, please contact Children’s Cerebral Palsy today. 

April 1, 2022
Staying active with cerebral palsy during Move More Month
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Protecting Cerebral Palsy Children from Omicron Variant

Protecting Cerebral Palsy Children from Omicron Variant

The COVID-19 Omicron variant has been rapidly spreading and affecting children, especially those who are being hospitalized. This variant is highly contagious and spreading quickly, which is a serious factor for the families that have a child with cerebral palsy (CP).  

A major concern for parents or caregivers of children who suffer with CP is the COVID-19 pandemic. Families have stopped their extracirruclar activities, limited the guests that are welcomed in their home and fear that their lives are never going to become normal again. Most parents are more distressed over the fact that their children won’t be able to live to their full potential. 

Throughout the pandemic especially now with the second surge, children with CP haven’t been able to communicate or gather with other children. They have only attended online school, and in reality they only leave their house for doctor’s apppointments. People fear this is affecting their children’s mental health and sociability. 

It is recommended to continue wearing a mask in any public facility, especially parents that have to go to work, visit the grocery store or run other immediate errands. This will be beneficial to your own health and your child’s when returning home. It is highly valuable to keep the home of someone who suffers CP extremely safe and clean. 

Mental health is a serious concern throughout the pandemic and in particular, children with CP who have been restricted from returning to normal activities due to the new variant . Dr Siambanes has provided helpful tips on improving a child’s mental health of those who suffer from cerebral palsy throughout the pandemic.

  • Outside Activities. Going on daily walks, or meeting friends at the park can drastically improve one’s health. Time spent outdoors is vital to a child’s happiness and can instantly boost their mood. It is safe to go outside and wave to friends at the park as long as you continue to follow the regulations of remaining six feet apart.  
  • Take breaks. Staying away from phones, computers, tablets and televisions is important. Staring at screens all day can be very detrimental to a child’s mental health. Take time to relax, breathe and meditate to stay positive throughout this time. 
  • Keep up with daily care. Make sure to continue staying up to date on your child’s physical care. Dr. Siambanes recommends keeping a physical or digital calendar if they take medicine, have exercises or therapy they need to follow, or have regularly-scheduled doctor’s appointments.
  • Eat Healthy. Continuing to eat healthy can become difficult in quarantine or lockdown, but it is a key element in staying healthy because it strengthens your immune system and creates a more balanced mood. 

While these tips are a general guideline to help maintain mental and physical health, each child’s case of CP is unique and should be tailored to the individual. Those who suffer with cerebral palsy all need different medical attention so, if you notice any serious concerns please reach out to your primary care physician. If you have any other questions or concerns contact Children’s Cerebral Palsy today.

January 26, 2022 ,
Protecting Cerebral Palsy Children from Omicron Variant
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About Dr. Siambanes

Dr. Siambanes, a board-certified orthopedic surgeon, is fellowship trained in both pediatric orthopedics and spinal deformities. His passion for addressing the needs of disabled children has led to his expertise in the treatment of Cerebral Palsy.

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Helping Children & Families

  • We would like to thank you for all you have done for our granddaughter. Not to very long ago things were not looking very good for Alyssa. That has all changed because of you. You have given her back her future. Thank you so very much. God bless you and keep you.

    Mr. & Mrs. Wajenhurst

  • As a parent, hearing your child needs corrective surgery that includes placing rods and screws in the body, a five day hospital stay and three weeks of recovery can be overwhelming to say the least. Dr. Siambanes and his wonderful staff eased 100% of the stress and worry while making what was in my mind a harrowing ordeal equal to an afternoon visit to the dentist. The hospital staff was attentive and eager to help in anyway possible. My son’s recovery has gone so well and he has healed so quickly, family and friends are amazed he even had surgery.

    Mrs. McKinnon

  • I scheduled an appointment with Dr. Siambanes to see if my daughter was a candidate for scoliosis surgery. The results following her surgery were fantastic! She flew through surgery and came home only 4 days after! She now sits up straight, her incision has healed beautifully and there were no complications. I cannot express my gratitude to Dr. Siambanes for the amazing surgery he performed on my daughter. He alone took her on when no one else would touch her and now her life has been prolonged and she has a much better quality of life.

    Mrs. Wakizaka