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Enjoying the winter with cerebral palsy

With today marking the beginning of winter, much of the country has experienced significant drops in temperatures. Although most experience only minor inconveniences, many children with cerebral palsy must endure increased limitations including seclusion, illnesses and bodily discomfort. With that, Children’s Cerebral Palsy is sharing different ways that children living with CP can keep warm, avoid unnecessary discomfort, and enjoy the winter.

The first concern to address is whether or not your child is appropriately clothed for colder weather. Choose clothing that can be easily donned or taken off. Colder temperatures can lead to stiff muscles and increased soreness, which will mean less comfortable nights of sleep. Consider purchasing an electric blanket for your child to sleep with at night.

Between the drop in temperatures and enforcement of the most recent COVID-19 mandates, this can mean a lot more time at home for all kids, especially those with a disability. For children with physical limitations, this time can be extremely isolating. To help quell the boredom during these times, parents should look to plan indoor activities for their child with CP, such as cooking, crafting, gaming and other activities that focus on building muscle strength and coordination. 

Decreasing temperatures bring inevitable winter illnesses. This can be more costly when dealing with compromised immune systems or other health disorders. Ensuring your child’s medical records are up to date and list the different medications your child takes is helpful in emergency medical situations, especially if you are traveling and can’t see your child’s primary care physician. 

Lastly, cold weather can cause your child with cerebral palsy severe discomfort through further stiffness of muscles and joints, cramping, aching and more. Depending on the symptoms, additional medical action may need to be taken. Because every case of cerebral palsy is different, it’s important for parents to be observant of their child’s symptoms. Designate time to speak with your child’s doctor about anything you’ve noticed and possible treatments or solutions to help mitigate discomfort. 

Winter can be tough for children with cerebral palsy, but going the extra mile to ensure your child is prepared is of paramount importance. In addition to the suggestions listed above, parents should talk with their child about their winter experiences and what can be done to help improve them. If you have immediate questions or concerns about preparing your child with CP for the winter, contact Children’s Cerebral Palsy today.

Enjoying the winter with cerebral palsy
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Staying Active With Cerebral Palsy

Exercise regimens are extremely important for a child’s wellbeing, including for those with cerebral palsy. Although certain activities can be difficult for children with cerebral palsy, experts at Children’s Cerebral Palsy offer various activities to help kids with CP stay active. 

“It’s important for children with CP to stay active and keep moving, as this can help maintain mobility and movement for as long as possible,” said Dr. David Siambanes, a board-certified and fellowship-trained spine surgeon and founder of Children’s Cerebral Palsy. “Through innovative activities and adaptive sports, parents can help maintain their child’s mobility and health while also having fun.”

To help improve movement and overall health, Dr. Siambanes suggests giving the following exercises and activities a try for children living with CP:

    • Hydrotherapy. Exercising in water is great for children with CP because it puts less stress on muscles and joints, as well as decreases a person’s body weight by 90 percent. This allows for a wider range of motion and improves cardiovascular conditioning since the heart pumps more blood per beat when the body is submerged in water.
    • Painting. To help people with CP strengthen their motor skills, painting is a great option. Not only will working fine motor skills help them be more precise and accurate in their movements, but painting helps children with CP focus on the art they’re creating rather than the energy they’re expending.
    • Adaptive sports. For children with CP unable to participate in traditional forms of popular games and sports, adapting these activities to meet their capabilities is a perfect way to build physical strength and self-esteem. Find a sport your child is interested in and consider ways to alter the rules or goals so they can participate fully. Check out CP Sport for a list of guidelines and resources for adapting particular sports.
    • Dancing. No matter your child’s condition or movement limitations, everyone can dance to music. Dance and rhythmic auditory stimulation benefits body functions like balance, gait, walking, and cardiorespiratory fitness for individuals with cerebral palsy.
    • Photography. Photography is a great activity that stimulates many different parts of the brain. It can help kids with cerebral palsy develop spatial awareness, express themselves creatively, and gain an appreciation for the outdoors. Additionally, learning to hold, point and shoot a camera can help further develop fine motor skills. 

Because all cases of CP are not the same, it’s best to take into consideration your child’s capabilities and strengths when deciding what activity to participate in. If you have questions about what activity is most appropriate, consult with your child’s primary care provider. If you have additional questions about how to keep your child with CP healthy and active, contact Children’s Cerebral Palsy today.

Staying Active With Cerebral Palsy
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Tampa spine surgeon shares cerebral palsy pain management tips

Dr. David Siambanes, director of the Childrens Scoliosis Center at St. Josephs Childrens Hospital and founder of Children’s Cerebral Palsy, is educating parents of children living with cerebral palsy (CP) on the various techniques and approaches for pain management associated with CP.

According to the Center for Disease Control and Prevention (CDC), cerebral palsy is a group of disorders that affect a person’s ability to move and maintain balance and posture and is the most common motor disability in childhood. CP impacts a child’s ability to control their muscles, oftentimes causing pain and discomfort for the approximately 800,000 people living with CP across the U.S.

“Alleviating pain in children can have positive physical and mental impacts during critical years of development,” said Siambanes, a board-certified orthopedic surgeon who is fellowship-trained in both pediatric orthopedics and spinal deformities. “We want parents to know there are a number of different options short of surgery that can ease your child’s pain and provide an opportunity to live a more comfortable life.”

Siambanes says children with minimum pain or discomfort can relieve their symptoms by enrolling in physical and occupational therapy sessions, where a child can engage in various stretches and exercise regimens intended to improve muscle and joint flexibility. In some cases, a child with CP may have the option to be fitted with orthoses, or braces designed to help support weakened muscles.

Some children with CP experience a moderate level of pain. Parents in search of a solution can turn to non- or minimally-invasive treatment options, including radiofrequency, neuromodulation or nerve ablation to target pain receptors, implanting a stimulator on the spinal cord to alter a child’s pain receptors, or injecting Botox into areas experiencing frequent muscle spasms to help numb the pain.

While surgery is considered a last resort for CP pain management, it is sometimes the only option available for children experiencing severe levels of pain. In these cases, surgical procedures generally fall into three categories:

  • Orthopaedic surgery – This procedure is recommended for children with spastic CP. Orthopaedic surgeons can increase the length of tendons and muscles in a person’s legs to make walking and moving less painful.
  • Spinal fusion – Spinal fusion procedures permanently connect two or more vertebrae, eliminating motion between them and providing stability. Spinal fusion involves techniques designed to mimic the normal healing process of broken bones and can improve a child’s organ function as they grow.
  • Selective Dorsal Rhizotomy – Selective Dorsal Rhizotomy (SDR), a surgery done on the lower spinal cord to reduce spasticity in the legs. Certain abnormal nerve fibers that cause high muscle tone are cut. This allows the muscles to relax by identifying and sectioning only the nerve fibers that contribute to spasticity.

The most appropriate treatment depends on different factors, including a child’s stage of development and form of CP. Siambanes advises parents of children living with CP to consult their pediatric physician to determine the right option for managing their pain. If you’re a parent of a child with cerebral palsy and have questions, visit our Contact page to get in touch.

Tampa spine surgeon shares cerebral palsy pain management tips
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Tampa spine doctor encourages Cerebral Palsy Awareness Month

According to the CDC, cerebral palsy is a condition, which affect a person’s ability to move and maintain balance, or posture, and is the most common disability involving motor control for children.

TAMPA, Fla. – Dr. David Siambanes with Children’s Cerebral Palsy is encouraging parents and expecting parents to become familiar with the symptoms of cerebral palsy in recognition of Cerebral Palsy Awareness month, which takes place each March.

Tampa spine doctor encourages Cerebral Palsy Awareness Month
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Tampa doctor recommends prenatal care, following new cerebral palsy report

A new report released this month indicates that cerebral palsy is not caused by certain conditions medical professionals once thought were to blame.

In general, the report suggests that an evidence review indicates that birth defects play a much larger role than asphyxia or prematurity, which were both previously thought to have been major causes.

Tampa doctor recommends prenatal care, following new cerebral palsy report
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Tampa doctor pushes national cerebral palsy awareness

Board-certified orthopedic surgeon Dr. David Siambanes, is an expert in cerebral palsy care and sees many children daily who deal with the disease.

TAMPA, Fla. – The month of March is National Cerebral Palsy Awareness Month, and the director of the Gait Analysis Center at St. Joseph’s Hospital is using this opportunity to inform more people about the disease and emphasize the need for early treatment.

Tampa doctor pushes national cerebral palsy awareness
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