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Surgical Procedures to Consider in 2023 for Children’s Cerebral Palsy

 

In the new year, you may be wondering how to alleviate the pain and increase the quality of life for a child who has Cerebral Palsy.

Fortunately, there are solutions that are worth considering in 2023. Surgery is one of those solutions.

There are two main types of surgery for Cerebral Palsy:

  • Orthopedic surgery: Children with severe contractures or deformities might benefit from surgery on bones or joints to place their arms, spine, hips or legs in their correct positions. Such surgical procedures can also lengthen muscles and lengthen or reposition tendons that are shortened by contractures. These corrections can lessen pain and improve mobility for children with Cerebral Palsy. The procedures can also make it easier to use other tools for combatting Cerebral Palsy, like a walker, braces or crutches.
  • Cutting nerve fibers (selective dorsal rhizotomy): In severe cases of Cerebral Palsy, when other treatments haven’t helped, surgeons can perform a procedure that involves cutting the nerves serving specific spastic muscles, called selective dorsal rhizotomy. This procedure can help relax the muscles in the legs and reduces pain.

Without surgery, there are other options to consider for a pain-free 2023, too.

For example, physical therapy can help a child’s strength, flexibility, balance, motor development and mobility, and occupation therapy can help your child gain independence in daily activities and routines. The latter can help improve your child’s use of walkers, wide-based canes, standing and seating systems, or electric wheelchairs.

For more information on surgical procedures for treating Cerebral Palsy, click here.

 

Surgical Procedures to Consider in 2023 for Children’s Cerebral Palsy
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Gift Ideas for Children With Cerebral Palsy

 

With the gift-giving season on the horizon, you might be wondering what types of gifts to purchase for a loved one with Cerebral Palsy.

The Children’s Cerebral Palsy Treatment Center has plenty of answers for all of your gift-giving questions.

Like any gift, it is important that the gift you give to a child with Cerebral Palsy is age appropriate, matches the child’s developmental stage, and is something that matches with the child’s interest. So, if a child for whom you are buying a gift likes animals, get them something related to animals.

Gifts ideas for children with Cerebral Palsy include:

  • Fidget toys that might help strengthen grip
  • Fold and Go trampolines that might help improve balance and leg strength
    • Find a trampoline with a safety rail for extra security.
  • An indoor therapy swing that might help with balance, muscle building, and fine motor skill development
  • Magnetic building blocks, which are a substitute for building block toys that make building easier for children with a lack of fine motor skills
  • Flashcard games for children with special needs
    • A common flashcard game for children with Cerebral Palsy is Feelings in a Flash, which teaches children to identify their emotions and increases their emotional intelligence
  • It is important for children with Cerebral Palsy to socialize, so any gifts that encourage socialization

There are some gifts that we should avoid purchasing for children with Cerebral Palsy.

Gifts that overstimulate the child, particularly if the child has sensitivity to bright lights or loud noises, should be avoided.

So should toys that require fine motor skills, which the child may not have. Such toys can be frustrating for a child with Cerebral Palsy, and they might not get enjoyment out of playing with a toy that requires such motor skills.

It may take a little bit of extra care, but you can brighten a child’s holiday season with the right gift.

The team at the Children’s Cerebral Palsy Treatment Center wish you and yours a joyous holiday season!

Gift Ideas for Children With Cerebral Palsy
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Preparing Children with Scoliosis for Cold Weather Months

Children with cerebral palsy already have a difficult time regulating their body temperature, and
cold weather can bring some negative symptoms. In most cases, the hypothalamus is often
damaged with cerebral palsy, which might result in autonomic nervous system dysfunction. It is
important to be highly prepared for the beginning of winter weather with any type of cerebral
palsy to reduce any negative symptoms that may arise.

The Autonomic Nervous System & Hypothalamus

Since the hypothalamus may be damaged in children with cerebral palsy, children may experience body dysfunction and other organ-related disorders/diseases. When the weather is cold, the hypothalamus will sense it and send signals to the muscles that make a person shiver, creating warmth. Children with cerebral palsy might not have this basic function because of the potentially damaged hypothalamus and autonomic nervous system. The hypothalamus might also signal the brain to constrict blood vessels to prevent heat loss, but in children with cerebral palsy, this might also not be possible.

Preparing for Winter Weather Conditions

Keeping the body warm is essential, and traveling with additional winter clothing can cut down the possibilities of negative symptoms associated with freezing conditions. Sizing up in clothing can also make it simple to layer on top of braces and Velcro straps, making them easier to remove. If residing in a place with frequent or excessive snowfall, it might help to invest in wheelchair tires with extra traction and reinforce ramps. Colder weather affects muscle movements and spasms as well, so acquiring wearable safety materials is imperative.

Other ways to combat weather conditions may include:
– Drinking or eating something warm/cool
– Maintaining heat/air sources in the home and vehicle
– Dress appropriately for current conditions
– Warm or cool baths
– Bring warm or cool water bottles
– Travel with extra essential items in case of emergency
– Medical equipment, blankets, thermal winter clothing, warm/cold compressions
– Stretch muscles often in a safe way to avoid stiffness or spasms

This may feel overwhelming at first, but you will be better prepared for many weather-related situations. Be sure to monitor children closely, and be aware of any signs or symptoms of hypothermia or heat stroke. By staying prepared for any weather conditions, your family can maintain a comfortable and regular routine while minimizing any weather-related complications.

 

Preparing Children with Scoliosis for Cold Weather Months
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Back-to-School Tips for 2022

Parents and children already endure an incredible number of challenges when it comes to education, and the pandemic added to those challenges. Schools around the world put COVID-19 protocols in place for the foreseeable future and special education facilities have increased the protection of their students returning back to school. 

These new changes can be a struggle for students and teachers, especially those with special needs and coexisting conditions, including cerebral palsy. Now that learning is back to in-person, students with disabilities can return to regular socialization and access to vital resources. 

Common challenges associated with remote learning for children with disabilities include taking those children out of their regular routines and dramatically reducing one-on-one learning and in-person socialization with students in the classroom.

Just as the pandemic brought challenges, there were also many brilliant new ideas that came to fruition. Many different resources helped students during these times, and they can still be used in the classroom, enhancing their digital learning experience. When we factor in-person learning into their daily routine, these tips can be crucial for a positive learning experience.

Dr. Siambanes asks parents of children with cerebral palsy to consider including the following items in their child’s in-person learning checklist:

  • Make sure any items your child needs are packed ahead of time (assistive devices, adaptive equipment, etc.)
  • Pack extra face masks and hand sanitizer
  • Review the school calendar daily, monitoring any changes to the schedule
  • Know your child’s educational team thoroughly, and keep in contact with them
  • Ask for assistance if you are unsure of new protocols

When ensuring educational success, it is critical to take important changes and specialty programs into account. Make sure to stay in contact with the recommended professionals, while writing down all your questions, concerns, and needs.

Returning to school can be nerve-wracking for the parent and child, especially when factoring in COVID-19. This has been a difficult time for many and understanding the resources you and your child have at school is very important. Transitional changes can be navigated with the right help from your child’s educational team. 

If you or your child begin feeling overwhelmed or stressed, understand there are people on the special education team for that reason. Many teachers are happy to help and have prior experience with these feelings. It is always okay to reach out for help.

It is important to monitor your child’s feelings and behaviors to identify potential issues, including:

  • Behavioral changes
  • Grade changes
  • Developmental changes
  • Emotional changes

While this may seem like a lot to digest, you will be better prepared for situations that arise. Problems may occur, but you can rest assured that you and your child’s educational team can navigate these problems together. 

By having a strong support system in your child’s family life and educational life, you can learn how to set your child up for success. Many of these things can help your student begin to realize that they can do anything they set their mind to, the opportunities are limitless.

Back-to-School Tips for 2022
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How swimming can help kids with cerebral palsy beat the summer heat, play with friends and improve their overall health

Children with cerebral palsy do not have to be excluded from summer fun with friends and family, and one way to get the kids in the neighborhood together for an inclusive activity is to go swimming. After all, who doesn’t love swimming in the dog days of summer? 

Children with CP can greatly benefit from swimming with proper supervision by a caregiver or therapist, and with flotation devices, if necessary.

“Because we are more buoyant in water, the effects of gravity decline, providing ideal conditions for those with cerebral palsy to stretch and extend muscles and joints with less resistance than one would experience out of the water,” said Dr. David Siambanes, founder of Children’s Cerebral Palsy. “More freedom of movement when swimming means a larger range of motion that can actually help those with CP make progress in their maneuverability.” 

Swimming also has fantastic rehabilitative qualities for those with CP. A study by the National Institute of Health (NIH) showed that for children ages five through 13 with CP who swam for two hours per week gained gross motor function in just six weeks. 

Children with CP also benefit from the overall health effects of swimming, which is a cardiovascular workout that also builds muscle strength. 

Through swimming and other physical activities, kids with CP — and all of us — can improve metabolic rates, increase blood circulation and joint range of motion, improve bone density, fend off anxiety and stress, and boost our energy levels. 

For more information on swimming and other physical activities that can benefit those with Cerebral Palsy, contact Children’s Cerebral Palsy today! 

How swimming can help kids with cerebral palsy beat the summer heat, play with friends and improve their overall health
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Ways New Technology Can Assist Your Child with CP

Assistive technology is any device — electronic or not — that helps maintain, increase or improve functional living for individuals with a disability or impairment. With technological advances happening rapidly, they can be modified and applied to those living with disabilities, as well. These new technologies can improve communication, mobility, learning capabilities and hearing. By using these devices, families can better help their children at home, in school, and during fun activities.

New Technology at Home 

Some aspects of home life can be difficult when someone in the family lives with cerebral palsy. It is important to utilize the components that work for you and your family and eliminate those that don’t. Family members with disabilities can face a number of unique challenges, and the following devices can be utilized to make life a bit easier:

  • Plates and bowls with non-slip bottoms
  • Adaptive scissors and art supplies
  • Non-skid rugs
  • Automated assistive devices
  • Automated tables and chairs
  • Specialized bathroom devices to encourage independence and confidence

New Technology in School Environments

Many special education schools and teachers form an Individualized Education Plan for each student. These plans can include assistive devices tailored to the needs of the student. These devices can include:

  • Vision aids – magnifying sheets to assist in reading, as well as text-to-speech programs on computers that can read words aloud for children with hearing challenges.
  • Communication devices – some devices can help a child choose words, letters, or pictures to convey what he or she wants to say. There is also eye-tracking software that helps the user select the appropriate items.
  • Transportation aids – these devices can consist of wheelchairs or powered scooters that can further help a child with their movement in school and beyond.

Overall, assistive technology can be used universally. It is important to include everyone in these new ideas that come into society so that anyone who is interested can get involved. Equal opportunities are crucial for everyone, and children who have Cerebral Palsy can have a difficult time participating in things. By removing these barriers, these children can have the same opportunity! They can thrive and break through social, physical, and cultural stereotypes. By using assistive technology, parents can set their children up for success. Children with Cerebral Palsy can, and do, have brilliant futures ahead.

 

Ways New Technology Can Assist Your Child with CP
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Founder of Children’s Cerebral Palsy highlights the importance of Mental Health Awareness Month

As May marks Mental Health Awareness Month, Dr. David Siambanes, founder of Children’s Cerebral Palsy is shedding light on the importance of mental health and how it translates to overall wellbeing for those with cerebral palsy (CP), as well as sharing tips on what those living with CP can do to improve their mental wellbeing. 

The most common mental health disorders are anxiety and depression, with about 46 percent of children reporting they deal with anxiety. According to the Cerebral Palsy Research Network, those with CP struggle with mental health issues more than their able-bodied counterparts because of the physical stress, social difficulties and other concerns. Because of the physical ailments children with CP sometimes face, their mental health can be overlooked. 

Those who have CP may experience mental health issues due to physical ailments such as pain, fatigue or dietary problems. Some children with CP also face issues with socializing, including limited interactions, restrictions on activities, education and family or relationship issues.

In recognition of Mental Health Awareness Month, Dr. Siambanes wants to address the importance of mental health in CP patients by sharing general tips on how to improve one’s mental wellbeing:

  • Change of Environment. Going outside and staying active benefits both physical and mental health. This allows you to be involved in competitions or set goals to feel a sense of satisfaction.
  • Socialize. Being around others can help distract you and boost your overall mood. Be sure to stay connected with family and friends to build relationships and share experiences with others. 
  • Therapy. Going to a therapist and talking about your feelings will help determine and may solve why you are feeling unwell. Sometimes it can be difficult to discuss this topic with someone you know, therapy is a good way to connect with someone and build a relationship that allows you to solve these problems.

Siambanes emphasizes to his patients that positive mental health is vital for overall physical wellbeing. If you or someone you know is struggling to deal with mental health issues, reach out to them and see if consulting a doctor is the next proper course of action. If you have any questions about mental health for those living with cerebral palsy, contact us today.

Founder of Children’s Cerebral Palsy highlights the importance of Mental Health Awareness Month
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Tampa spine doctor encourages Cerebral Palsy Awareness Month

According to the CDC, cerebral palsy is a condition, which affect a person’s ability to move and maintain balance, or posture, and is the most common disability involving motor control for children.

TAMPA, Fla. – Dr. David Siambanes with Children’s Cerebral Palsy is encouraging parents and expecting parents to become familiar with the symptoms of cerebral palsy in recognition of Cerebral Palsy Awareness month, which takes place each March.

Tampa spine doctor encourages Cerebral Palsy Awareness Month
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Tampa doctor recommends prenatal care, following new cerebral palsy report

A new report released this month indicates that cerebral palsy is not caused by certain conditions medical professionals once thought were to blame.

In general, the report suggests that an evidence review indicates that birth defects play a much larger role than asphyxia or prematurity, which were both previously thought to have been major causes.

Tampa doctor recommends prenatal care, following new cerebral palsy report
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Tampa doctor pushes national cerebral palsy awareness

Board-certified orthopedic surgeon Dr. David Siambanes, is an expert in cerebral palsy care and sees many children daily who deal with the disease.

TAMPA, Fla. – The month of March is National Cerebral Palsy Awareness Month, and the director of the Gait Analysis Center at St. Joseph’s Hospital is using this opportunity to inform more people about the disease and emphasize the need for early treatment.

Tampa doctor pushes national cerebral palsy awareness
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