News

Holiday Travel Tips for Kids with Cerebral Palsy

The holiday season brings cherished moments with family and friends, but for parents of children with cerebral palsy, traveling can pose unique challenges. From packing essential items to planning for accessibility, a little preparation can make your holiday journey smoother and more enjoyable for everyone. Here are some practical travel tips to help you navigate holiday travel with confidence and ensure a comfortable experience for your child with cerebral palsy.

1. Plan Ahead for Accessibility

Before heading to your destination, call ahead to confirm accessibility accommodations. Whether you’re traveling by car, plane, or train, ask about facilities like accessible restrooms, elevators, or ramps. For air travel, notify the airline in advance of any special needs to ensure wheelchair access, priority boarding, or other assistance. Many airlines and transportation services have policies to make travel easier for families with disabilities, but these often need to be arranged in advance.

Helpful Tip:

Request aisle seats for more room if you’re flying, or seats near an exit for easier access if you’re taking the train.

2. Bring Essential Equipment and Comfort Items

Traveling with cerebral palsy may require additional equipment to ensure comfort and mobility. Don’t forget essentials like wheelchairs, walkers, or any braces and orthotics that your child uses regularly. Pack comfort items, such as favorite pillows, blankets, or sensory toys, to help them feel more at ease in unfamiliar surroundings.

Suggested Packing List:

Wheelchair or mobility device
Braces, orthotics, or other supportive equipment
Extra batteries or chargers (for powered devices)
Favorite comfort items (blanket, stuffed animal, etc.)
Portable snacks and drinks for quick energy boosts

3. Prepare Medications and Medical Supplies

If your child takes medication or has specific medical needs, ensure you have an adequate supply for the trip and bring extra, if possible. Pack medications in their original containers and place them in an easily accessible bag for quick retrieval. It’s also a good idea to carry a copy of your child’s medical information, including prescriptions and contact information for their healthcare providers.

Essential Medical Supplies:

Daily medications and extras
Emergency contact information
Medical documentation and prescriptions
Portable medical devices (like nebulizers if needed)

4. Schedule Frequent Breaks

Long periods of sitting can be uncomfortable for children with cerebral palsy, especially those with high muscle tone. Schedule regular breaks to allow your child to stretch, move, and reset. If you’re driving, plan stops at rest areas along the way. If you’re flying, consider taking walks down the aisle when safe to do so, or finding quiet areas in the airport to relax before boarding.

Pro Tip:

Allowing time for stretching or light movement during breaks can reduce muscle stiffness and make the journey more pleasant for your child.

5. Create a Sensory-friendly Environment

Holiday travel can be overwhelming for children with sensory sensitivities. Crowded airports, loud noises, and bright lights can lead to overstimulation and stress. Bring noise-canceling headphones, sunglasses, or sensory toys to help your child cope with these stimuli. Some families also find it helpful to bring a weighted blanket or lap pad, which can provide comfort and a sense of security.

Helpful Item Suggestions:

Noise-canceling headphones
Sunglasses to reduce light sensitivity
Weighted blanket or lap pad
Fidget toys for sensory engagement

6. Prepare Your Child for the Journey

Explaining what to expect during the trip can ease anxiety for many children. Talk to your child about the different parts of the journey, such as going through security at the airport, boarding a plane, or making stops along a long car ride. Visual aids, like pictures or videos of airports and airplanes, can help familiarize them with new environments and reduce any fears or uncertainties.

Tip for Younger Children:

Use a social story to walk through each step of the travel process. This can be especially helpful for children with limited communication abilities.

7. Practice Patience and Flexibility

Traveling with children often comes with unexpected changes, and for parents of children with cerebral palsy, flexibility is key. Allow extra time for each step of the journey, whether it’s passing through airport security, loading the car, or navigating a busy rest stop. Building in time for adjustments can help keep stress levels low and allow you to handle any surprises with ease.

Reminder:

It’s okay if things don’t go exactly as planned — focus on enjoying the journey and making memories along the way.

8. Know When to Ask for Help

Many airports, train stations, and other facilities offer support services for families with children with disabilities. Don’t hesitate to reach out for assistance, whether you need help with luggage, navigating the airport, or finding accessible amenities. Many people are happy to lend a hand to make your travel experience easier.

Extra Tip:

Look for programs like TSA Cares, which offers additional support for travelers with medical conditions or disabilities.

Traveling with Confidence and Joy

As you prepare for the holiday season, remember that thoughtful planning and a flexible mindset can help make travel more enjoyable for everyone. Dr. Siambanes and the team at Children’s Cerebral Palsy are dedicated to supporting families year-round, helping children with cerebral palsy gain greater independence and mobility through specialized orthopedic care.

We wish you safe travels and a joyful holiday season filled with special moments together.

November 11, 2024 Kids, News, Transport

The Benefits of Cerebral Palsy Surgery

For many children with cerebral palsy, surgery can provide life-changing improvements in mobility, comfort, and quality of life. Whether it’s addressing difficulties with walking, sitting, or managing pain, surgical interventions play a critical role in correcting deformities and helping children reach their full potential.

At Children’s Cerebral Palsy, Dr. David Siambanes, a board-certified orthopedic surgeon, is leading the way in innovative surgical care for children with cerebral palsy. Fellowship-trained in both pediatric orthopedics and spinal deformities, Dr. Siambanes is deeply passionate about improving the lives of children with disabilities through expert care and cutting-edge techniques.

Why Surgery is Beneficial for Children with Cerebral Palsy

Cerebral palsy often results in muscle stiffness (spasticity), abnormal muscle tone, and other physical challenges that can lead to issues with mobility and posture. Over time, these problems can cause pain, deformities, and difficulty performing everyday activities like walking and sitting.

For some children, surgery becomes a necessary step in addressing these challenges, especially when less invasive treatments like physical therapy or orthotic support aren’t enough.

Key Benefits of Surgery for Children with Cerebral Palsy

Improved Mobility One of the most significant benefits of cerebral palsy surgery is the potential for improved movement. By addressing tight muscles, abnormal gait, and joint deformities, surgery can help children walk more easily, whether it’s allowing them to take their first steps or improving the efficiency and comfort of their gait.
Increased Comfort Children with cerebral palsy often experience pain due to muscle imbalances, joint deformities, or other complications. Surgery can correct these issues, relieving pain and allowing children to engage in daily activities without discomfort.
Better Sitting Tolerance For children who use wheelchairs or spend much of their day sitting, surgery can significantly improve posture and comfort. By correcting spinal or hip deformities, surgical interventions help children maintain a more balanced and comfortable position, reducing the risk of pressure sores or chronic pain.
Prevention of Future Complications Without intervention, the physical challenges associated with cerebral palsy can worsen over time. Surgery can prevent the progression of deformities, reduce the risk of future complications, and allow children to grow and develop with fewer physical limitations.

Dr. Siambanes: A Leader in Cerebral Palsy Care

Dr. Siambanes has dedicated his career to addressing the complex needs of children with cerebral palsy. As the director of the Motion Analysis Lab, he uses advanced technology to assess children’s gait and identify the physical barriers contributing to abnormal movement patterns. This cutting-edge approach allows him to develop highly personalized surgical plans that target the root causes of a child’s mobility challenges.

Dr. Siambanes has performed countless procedures to improve walking and sitting tolerance for children with cerebral palsy, providing lasting relief from pain and correcting deformities. His expertise extends beyond surgery, as he also plays a crucial role in the non-operative management of pediatric spine deformities through his work as the director of The Scoliosis Center at St. Joseph’s Children’s Hospital.

A Comprehensive Approach to Surgery

At Children’s Cerebral Palsy, Dr. Siambanes takes a holistic approach to care, working closely with physical therapists, orthotists, and families to ensure each child receives the most effective treatment plan. Surgery is just one part of the process; comprehensive postoperative care, including physical therapy, is essential for ensuring long-term success.

The rapid growth of the cerebral palsy clinic under Dr. Siambanes’ leadership is a testament to the demand for specialized care in Tampa and its surrounding areas. His devotion to treating the most severe cases of cerebral palsy has attracted community attention, further solidifying his reputation as a leading expert in pediatric orthopedic surgery.

A Brighter Future Through Surgery

For children with cerebral palsy, surgery can be a transformative experience that opens the door to new possibilities. From improving mobility to enhancing comfort and preventing future complications, the benefits of surgical intervention are profound. With the expertise and compassion of Dr. Siambanes and his team at Children’s Cerebral Palsy, families can feel confident that their child is receiving the best possible care.

If you believe your child may benefit from cerebral palsy surgery, contact Children’s Cerebral Palsy to schedule a consultation with Dr. Siambanes today. Together, we can help your child reach their full potential and enjoy a higher quality of life.

October 28, 2024 News

Addressing High Muscle Tone in Children With Cerebral Palsy

For many parents, seeing their child struggle with muscle stiffness and tightness can be difficult and confusing. High muscle tone, also known as hypertonia, is a common symptom in children with cerebral palsy and significantly impacts their mobility and comfort.

What is High Muscle Tone?

High muscle tone refers to the increased stiffness or tightness in muscles, making it difficult for a child to move freely. In children with cerebral palsy, this occurs because the brain sends abnormal signals to the muscles, causing them to contract more than necessary. As a result, everyday movements, like reaching for a toy or taking a step, can become challenging or even painful.

How High Muscle Tone Affects Movement

Children with high muscle tone often have muscles that are constantly tight, even when they’re at rest. This stiffness can make simple tasks — like walking, holding objects, or even sitting — more difficult.

Hypertonia can vary in severity, but common signs include:

Muscle stiffness: Muscles that feel tight and are resistant to movement.
Abnormal posture: The child may seem to always be in an awkward or strained position.
Difficulty with joint movement: Trouble bending or straightening the knees, elbows, or wrists.
Toe walking: A common issue where the child walks on their toes due to muscle tightness in the legs.
Limited range of motion: Difficulty moving limbs through their full range, such as raising arms or kicking legs.

What Causes High Muscle Tone?

High muscle tone in cerebral palsy is caused by damage to the parts of the brain that regulate muscle control. This damage typically occurs before, during, or shortly after birth. The effect of hypertonia varies from child to child, with some experiencing mild stiffness while others struggle with more severe muscle rigidity. Hypertonia can be triggered by various factors, including:

Premature birth: Premature babies are at a higher risk of brain injury that may lead to high muscle tone.
Infections during pregnancy: Conditions like cytomegalovirus or toxoplasmosis can increase the likelihood of cerebral palsy and hypertonia.
Lack of oxygen: When a baby’s brain doesn’t receive enough oxygen during labor or delivery, it can result in damage, leading to hypertonia.
Birth complications: Difficulties during delivery, such as prolonged or complicated labor, may cause brain damage, leading to hypertonia.
Genetic factors: In some cases, cerebral palsy and hypertonia can be inherited through genetic factors.

Types of High Muscle Tone in Children with Cerebral Palsy

Children with cerebral palsy experience high muscle tone in different ways depending on the type and severity of their condition:

Spastic Cerebral Palsy: The most common form, where high muscle tone leads to stiff, jerky movements.
Dystonia: A type of cerebral palsy where muscle tone can fluctuate between being too high or too low, causing unpredictable movements.
Rigidity: A more severe form where muscles are stiff and resist all movements, making it difficult for the child to function.

Depending on the type of high muscle tone a child has, their treatment plan may include physical and occupational therapy, medication, or surgery.

Managing High Muscle Tone in Cerebral Palsy

There are several approaches to managing high muscle tone, each aimed at improving comfort, increasing mobility, and preventing complications like joint deformities. Treatments often involve a combination of therapies, medications, and sometimes surgery, depending on the severity of the hypertonia.

Physical Therapy

Physical therapy is a critical part of managing high muscle tone. A physical therapist works with your child to perform exercises that can stretch tight muscles and improve flexibility. The goal is to help reduce stiffness and improve movement, enabling your child to engage more easily in everyday activities.

Medications and Injections

Oral Medications: These can help relax the muscles and reduce stiffness. However, the effects vary, and medications must be monitored closely for side effects.
Botox Injections: Botox is often injected into specific muscles to reduce spasticity temporarily, making movement easier for several months at a time.
Baclofen Pumps: For more severe cases, a surgically implanted pump can deliver medication directly to the spinal cord, reducing muscle tone throughout the body.

Orthotic Devices

Braces and orthotic devices, such as ankle foot orthoses (AFOs), can provide support to stiff muscles and joints. These devices help keep the limbs in proper alignment, preventing deformities and improving the child’s ability to walk or move more efficiently.

Surgical Options

In cases where high muscle tone severely affects a child’s ability to move or function, surgery may be considered. Surgeries like tendon release or selective dorsal rhizotomy aim to relieve tightness and spasticity by lengthening muscles or cutting certain nerves to reduce muscle tone.

Physical Therapy and Exercises

Physical therapy is often the first line of treatment for managing hypertonia. Therapists work with children to develop strength, flexibility, and range of motion. The goal is to improve muscle control and reduce stiffness, allowing the child to move more freely. Some common therapeutic interventions include:

Stretching exercises: Gentle stretches can help loosen stiff muscles, reduce pain, and increase flexibility.
Strengthening exercises: Building muscle strength in unaffected areas helps children compensate for weakness caused by hypertonia.
Functional training: Activities that focus on improving everyday movements, such as walking or grasping objects, can enhance a child’s ability to perform daily tasks.
Aquatic therapy: Water-based exercises can help children with cerebral palsy improve balance, coordination, and muscle control.

The Importance of Regular Monitoring

As your child grows, their muscle tone and needs will change. Regular check-ups with a board-certified orthopedic surgeon with training in pediatric orthopedics, like Dr. Siambanes, are essential for ensuring that treatments are adjusted as needed. This ongoing care helps prevent complications like joint deformities or worsening stiffness, which could hinder mobility further.

Helping Your Child Thrive with High Muscle Tone

Living with hypertonia is challenging, but there are many ways to help your child overcome obstacles and lead a fulfilling life. Providing emotional support and staying involved in their care plan can make a big difference. Celebrating small victories, like improved movement or reduced stiffness, helps encourage your child’s progress and builds their confidence.

Personalized Care for Children with Cerebral Palsy

Every child with cerebral palsy is unique, and managing high muscle tone requires a personalized approach. By working closely with healthcare professionals, including pediatric orthopedists and therapists, you can ensure that your child receives the best possible care. At Children’s Cerebral Palsy, we are dedicated to providing comprehensive treatment plans that address both the physical and emotional needs of children with high muscle tone, helping them reach their full potential.

Click here to request an appointment.

September 30, 2024 News

A Parent’s Guide to Spastic Cerebral Palsy

For parents, watching your child struggle with everyday movements due to spastic cerebral palsy can be difficult. The stiffness and muscle tightness that characterize this condition make even the simplest tasks a challenge. But with the right support and care, there are ways to help your child move more comfortably and live a fuller life.

What is Spastic Cerebral Palsy?

Spastic cerebral palsy is the most common type of cerebral palsy, affecting roughly 80% of children diagnosed with this condition. It is characterized by increased muscle tone, resulting in stiffness and difficulties with movement. This stiffness, known as spasticity, is caused by disrupted signals from the brain to the muscles, making even simple movements challenging.

How Spasticity Affects Movement

In children with spastic cerebral palsy, the muscles often feel tight and resist movement. This can lead to difficulties in performing everyday activities such as walking, dressing, and eating. The degree of spasticity can vary from mild to severe, affecting one or more limbs, and may require different levels of intervention to manage effectively.

Signs and Symptoms of Spastic Cerebral Palsy

Spastic cerebral palsy presents with various symptoms that may affect different parts of the body. These symptoms can include:

Stiff or tight muscles, particularly in the legs, arms, and back.
Abnormal gait, such as walking on toes or a scissoring gait where the knees cross.
Difficulty with fine motor skills, such as picking up small objects or writing.
Delayed milestones, including sitting, crawling, and walking.
Difficulty with speech due to spasticity in the facial and throat muscles.

Types of Spastic Cerebral Palsy

Spastic cerebral palsy is divided into several types based on the limbs affected:

Spastic Diplegia: Primarily affects the legs, making walking difficult.
Spastic Hemiplegia: Affects one side of the body, usually an arm and a leg.
Spastic Quadriplegia: Affects all four limbs and the body, often resulting in severe mobility and communication challenges.

Managing Spastic Cerebral Palsy

There is no cure for spastic cerebral palsy, but there are various treatments available to help manage the symptoms and improve your child’s quality of life. A multidisciplinary approach, often involving pediatric neurologists, orthopedists, physical therapists, and other specialists, is essential for comprehensive care.

Physical Therapy

Physical therapy is a cornerstone of treatment for children with spastic cerebral palsy. It helps improve mobility, strength, and coordination. Regular therapy sessions can also prevent the worsening of contractures (permanent muscle shortening) and help your child achieve greater independence in daily activities.

Orthotic Support

Braces, such as ankle foot orthoses (AFOs), are commonly prescribed to support the feet and ankles, helping children walk more efficiently. These braces can prevent issues like toe walking and improve overall stability.

Medical and Surgical Interventions

Botox Injections: Used to reduce muscle spasticity and improve movement.
Surgery: In cases where spasticity causes severe deformities or pain, surgical interventions may be necessary to correct bone and muscle alignment.

The Importance of Regular Monitoring and Adjustments

As your child grows, their needs and the effectiveness of treatments may change. Regular check-ups with your child’s care team are crucial to ensuring that therapies and interventions are adjusted to provide the best outcomes.

Supporting Your Child’s Emotional Well-being

Children with spastic cerebral palsy may face challenges beyond their physical symptoms, including feelings of frustration, embarrassment, or isolation. It’s important to provide emotional support and ensure that your child feels included and understood. Encouraging participation in activities, fostering social connections, and seeking support from counselors or support groups can make a big difference in your child’s mental health.

Empowering Parents and Families

Navigating life with spastic cerebral palsy can be overwhelming, but you are not alone. At Children’s Cerebral Palsy, we are here to support you every step of the way. From providing medical care to offering resources and guidance, our goal is to help your child reach their full potential.

Choose a Holistic Approach to Care

Caring for a child with cerebral palsy requires a comprehensive and compassionate approach. By understanding the condition, seeking regular care, and focusing on your child’s physical and emotional needs, you can help them achieve a better quality of life. At Children’s Cerebral Palsy, we are committed to partnering with you on this journey, providing the expert care and support your family deserves.

Meet Dr. David Siambanes

Dr. Siambanes, a board-certified orthopedic surgeon, is fellowship-trained in both pediatric orthopedics and spinal deformities. His passion for addressing the needs of disabled children has led to his expertise in the treatment of cerebral palsy.

He has performed countless procedures to improve walking and sitting tolerance, reducing pain and correcting deformities in children with cerebral palsy.

Click here to request a consultation with Dr. Siambanes today.

August 22, 2024 News

Foot Braces for Children with Cerebral Palsy

Children with cerebral palsy often face challenges with mobility due to muscle spasticity. Foot braces, also known as orthoses, play a significant role in helping these children walk more efficiently and with less pain.

The Role of Foot Braces in Cerebral Palsy

Foot braces, particularly ankle foot orthoses (AFOs), are commonly prescribed for children with cerebral palsy. These braces support the foot and ankle, helping to improve walking patterns and reduce discomfort.

Types of Ankle Foot Orthoses (AFOs)

Hinged AFOs: These braces allow some movement, providing flexibility while maintaining support.
Rigid AFOs: These braces keep the foot in a fixed position, which helps in preventing toe walking and maintaining proper alignment.

Benefits of AFOs

Prevention of Toe Walking: AFOs help keep the foot flat, preventing the child from walking on their toes.
Improved Foot Control: For diplegic children who tend to be flat-footed, AFOs offer better control and stability.
Enhanced Walking Efficiency: By providing proper support, AFOs make walking less painful and more efficient.

Selecting the Right Brace

Choosing the right brace involves a comprehensive evaluation by a qualified orthopedist, like Dr. Siambanes, and a certified orthotist. These professionals will assess your child’s specific needs and determine the most suitable type of brace.

Factors Considered in Brace Selection

Degree of Spasticity: The severity of muscle tightness will influence whether a hinged or rigid brace is recommended.
Foot and Ankle Alignment: Proper alignment is crucial for effective walking, and the type of brace selected will help maintain this alignment.
Child’s Activity Level: More active children may benefit from hinged AFOs that allow greater flexibility, while less active children might need rigid AFOs for better support.
Comfort and Fit: Ensuring that the brace fits well and is comfortable for the child to wear is essential for long-term use.

Wearing and Usage Guidelines

Children typically wear braces for 6-8 hours a day. In some cases, nighttime braces are also recommended to maintain proper alignment while sleeping.

Addressing Concerns About Wearing Braces

Many children feel self-conscious about wearing braces, especially during school hours. It’s important to address these feelings and find solutions that encourage brace use without causing embarrassment.

When Braces Become Intolerable

If a child finds braces uncomfortable or intolerable, other treatments such as casting, Botox injections, or surgery may be necessary to correct alignment issues and prevent further complications.

Importance of Regular Evaluations

Regular evaluations by a qualified orthopedist and orthotist are crucial to ensure the braces are fitting correctly and effectively aiding the child’s mobility. These professionals can make necessary adjustments and provide alternative solutions if needed.

Get Care for Your Child with Cerebral Palsy

Foot braces are a vital part of managing cerebral palsy, offering significant benefits in terms of comfort and mobility. Ensuring that your child receives the proper evaluation and support from healthcare professionals will help them achieve the best possible outcomes.

At Children’s Cerebral Palsy, we are dedicated to providing comprehensive care for children with cerebral palsy. Dr. Siambanes is here to support your child’s journey to improved mobility and a better quality of life through the effective use of foot braces and other treatments. Click here to contact us and schedule an appointment today.

July 24, 2024 News

Comprehensive Guide to Cerebral Palsy Treatments

Cerebral palsy is a group of neurological disorders that affect movement, muscle tone, and coordination. It is the most common motor disability in childhood, and while there is no cure, various treatments can significantly improve quality of life.

Under the guidance of Dr. Siambanes and Children’s Cerebral Palsy, we are committed to raising awareness and providing resources for families and individuals affected by cerebral palsy. The cerebral palsy treatments below are among the many available options.

A Look at Cerebral Palsy Treatments

Cerebral palsy treatments are diverse and tailored to each individual’s unique needs. They aim to manage symptoms and improve motor functions. An interdisciplinary approach, incorporating therapies, medications, and sometimes surgical interventions, often proves most effective.

Among the many therapeutic options available, physical therapy and occupational therapy are two of the most commonly recommended treatments. These therapies are crucial in promoting mobility, independence, and daily functioning for individuals with cerebral palsy.

Physical Therapy

Physical therapy is a cornerstone of cerebral palsy treatment, focusing on enhancing motor skills, strength, and balance. Through targeted exercises, physical therapists help improve muscle strength and coordination, leading to better movement control.

Additionally, therapy activities are designed to boost balance and flexibility, significantly reducing the risk of falls and injuries. Dr. Siambanes and pediatric physical therapists work together to tailor exercise programs that improve strength, mobility, and coordination.

Occupational Therapy

Occupational therapy is a vital component of cerebral palsy treatments. It helps individuals develop the skills needed for daily living. Therapists work with children to teach them essential tasks such as dressing, eating, and bathing, promoting greater independence.

Additionally, they recommend the use of adaptive equipment, such as special utensils or seating arrangements, to facilitate these activities. Through tailored strategies, occupational therapy enhances the ability to perform everyday tasks, thereby improving overall quality of life as part of comprehensive cerebral palsy treatments.

Advanced Gait Analysis

Our state-of-the-art motion analysis center is equipped for 3-D gait analysis, allowing us to precisely measure movement, muscle activity, and force production during walking. This advanced system supports accurate diagnoses and guides the development of targeted treatment plans for improved mobility and function.

Advanced Cerebral Palsy Treatments

Advanced cerebral palsy treatments include medications and surgical solutions, which can be tailored to address specific symptoms and improve quality of life. These advanced cerebral palsy treatments offer targeted solutions that, when combined with therapies, can significantly improve daily functioning.

Medications

Muscle Relaxants: Medications such as baclofen and diazepam are prescribed to reduce muscle spasticity and improve movement
Botox Injections: Botulinum toxin can be injected into specific muscles to relieve spasticity for a few months, aiding in more effective physical therapy
Anticonvulsants: Used to control seizures, which are common in individuals with cerebral palsy

Surgical Solutions

Surgical options, as advised by Dr. Siambanes, might include orthopedic surgery for tendon release and muscle lengthening, as well as innovative procedures like selective dorsal rhizotomy and intrathecal baclofen therapy.

Orthopedic Surgery: Procedures like tendon release and muscle lengthening aim to correct alignment and improve mobility
Selective Dorsal Rhizotomy (SDR): A neurosurgical procedure that reduces spasticity by cutting nerve fibers that cause muscle tightness
Intrathecal Baclofen Therapy (ITB): ITB involves the implantation of a pump that delivers muscle relaxants directly to the spinal fluid, providing long-term relief from spasticity

Alternative and Complementary Therapies

Alternative therapies are an important aspect of comprehensive cerebral palsy treatments, offering additional avenues to improve quality of life. Aquatic therapy, or hydrotherapy, uses water’s buoyancy to support movement and reduce stress on muscles and joints. This therapy helps enhance motor skills and reduce spasticity through low-impact exercises.

Speech and language therapy focuses on improving communication skills, which are essential for social interaction and development. Therapists work on articulation and fluency to enhance speech clarity, and for nonverbal children, they introduce communication aids like picture boards or speech-generating devices. These therapies help children express themselves better and interact more effectively with their environment.

Our Multidisciplinary Approach

At Children’s Cerebral Palsy, under the leadership of Dr. Siambanes, we pride ourselves on our comprehensive approach to care, tapping into the expertise of specialists from various fields to ensure every aspect of each child’s needs is addressed. This multidisciplinary approach is fundamental to our mission, ensuring that all treatments are cohesive and tailored to enhance our patient’s overall quality of life. Our multidisciplinary approach includes access to:

Pediatric Neurologists: Pediatric neurologists provide expert management of seizures and spasticity through tailored medication plans guided by Dr. Siambanes.
Pediatric Neurosurgeons: These surgeons perform selective dorsal rhizotomy and install baclofen pumps to manage severe spasticity as part of strategies developed under Dr. Siambanes’ supervision.
Pediatric Physiatrists: Physiatrists provide medical management of spasticity and targeted Botox injections to enhance function in coordination with Dr. Siambanes’ treatment protocols.
Pediatric Orthopedists: Our orthopedists conduct surgeries to release contractures and realign deformities, improving mobility and use of limbs, following the comprehensive plans laid out by Dr. Siambanes.
Pediatric Physical Therapists: Physical therapists focus on rehabilitation to boost range of motion, gait, and strength for better daily functionality, integrated into Dr. Siambanes’ holistic care strategy.

This collaborative team approach ensures each child at Children’s Cerebral Palsy receives the most effective, customized treatment plan possible, combining medical expertise with compassionate, patient-centered care led by Dr. Siambanes.

Get Expert Advice and Support Today

Children’s Cerebral Palsy, under the leadership of Dr. Siambanes, is dedicated to providing the highest standard of care and support for families and individuals with cerebral palsy. We are committed to crafting personalized treatment plans that address the unique needs of each child. Contact Dr. Siambanes and the Children’s Cerebral Palsy team now to schedule your consultation and start on the path to better management and improved daily living for your child. Together, with our comprehensive and compassionate approach, we can make a significant difference.

June 27, 2024 News

Dr. Siambanes to Speak at The 26th Annual Family Café: Orthopedic Care for Children with Cerebral Palsy

We are excited to announce that Dr. David Siambanes will be presenting an important lecture at the 26th Annual Family Café on Friday, June 14, from 4:30 PM to 5:30 PM at Bayhill 29. This session, titled “Orthopedic Care of the Child With Cerebral Palsy,” is an essential opportunity for families, caregivers, and healthcare professionals to gain deeper insights into the specialized orthopedic needs of children with cerebral palsy.

Lecture Details

The session will cover the natural progression of orthopedic deformities in children with cerebral palsy. A significant focus will be on the walking difficulties faced by children with cerebral palsy. Dr. Siambanes will outline the necessary interventions that can assist in maximizing mobility and function.

Treatment strategies designed to maximize function and improve walking capabilities will be thoroughly explored, providing attendees with actionable knowledge to support children in achieving their best mobility outcomes.

About The 26th Annual Family Café

The Family Café remains a cornerstone event for collaboration, advocacy, friendship, and empowerment for individuals with disabilities and their families. This year’s event will feature over 230 breakout sessions across various topics, keynote speeches, and the Annual Governor’s Summit on Disabilities, among many other activities designed to enrich the disability community.

Dr. Siambanes’ lecture is just one of many sessions that cater to the diverse needs and interests of attendees. Whether you’re a family member, a healthcare provider, or an advocate, the insights from this session are invaluable.

We encourage all attendees to explore the full range of sessions and activities at The Family Café. It’s not just an event; it’s a community and a movement towards a more informed, empowered, and connected life for people with disabilities and their families.

Please join us in this engaging session with Dr. Siambanes to learn more about improving the lives of children with cerebral palsy through dedicated orthopedic care.

For more information on the full schedule and other activities at The 26th Annual Family Café, please visit https://familycafe.net/annual-family-cafe/.

June 4, 2024 News

Hip Dysplasia in Children with Spastic Quadriplegic Cerebral Palsy

Hip dysplasia is a common but severe issue in children with spastic quadriplegic cerebral palsy that occurs when the hip joints do not form properly. In these children, muscle tightness and uneven muscular tension can pull the hip out of its socket during developmental years. This misalignment often results in significant discomfort and can severely impact the child’s daily life.

Symptoms of Hip Dysplasia in Children

The primary indication of hip dysplasia in children is pain which can be evident during activities like sitting or diaper changes, and even while at rest. Children who are nonverbal may express discomfort through crying or agitation, signaling pain that they cannot articulate.

Why Early Treatment is Essential

Leaving hip dysplasia untreated can lead to worsening conditions and more severe pain. It’s not just about discomfort; untreated hip dysplasia can lead to long-term physical complications that may hinder sitting balance and overall mobility.

Optimal Timing for Treatment

The best results for treating hip dysplasia are typically achieved when the procedure to correct the hip alignment is performed between the ages of seven and twelve. This timing allows the hip joint to develop more normally as the child grows.

The Surgical Solution: Hip Relocation

Hip relocation surgery involves repositioning the hip bone back into its socket. This procedure is critical as it helps the hip joint to develop properly and maintains the alignment necessary for comfortable sitting, especially as the child transitions into adulthood.

Life After Surgery

Post-surgery, children usually experience a significant reduction in pain and an improvement in their ability to participate in daily activities. The surgery, combined with follow-up care such as physical therapy, ensures the hip remains properly positioned as the child continues to grow.

Supporting Your Child Through Recovery

Recovery from hip relocation surgery involves close monitoring by healthcare professionals and support at home from family. Rehabilitation may include physical therapy to strengthen the hip and surrounding muscles, aiding in faster recovery and better overall function.

Providing Comfort and Mobility to Children with Cerebral Palsy

Addressing hip dysplasia in children with spastic quadriplegic cerebral palsy is crucial for alleviating pain and enhancing life quality. Early diagnosis and timely surgical intervention can prevent future complications, making everyday activities more comfortable and enjoyable for the child.

At Children’s Cerebral Palsy, we are committed to providing comprehensive care and support for families dealing with hip dysplasia. Our goal is to help every child achieve the best possible outcomes and lead a comfortable life, regardless of their challenges. Click here to request an appointment today.

May 8, 2024 News

Spinal Balance in Children with Cerebral Palsy and the Benefits of Surgery

Caring for a child with cerebral palsy involves addressing a range of complex needs to enhance their quality of life. Among these is the crucial aspect of achieving and maintaining spinal balance post-surgery, especially for those with conditions such as scoliosis and other spinal deformities.

The Importance of Spinal Balance

The human body operates optimally when it is properly aligned. For children with cerebral palsy, maintaining this alignment is essential not only for comfort but also for overall function. Surgical interventions to correct spinal deformities focus on achieving a balance that supports the body’s natural structure.

Frontal Plane Balance

Scoliosis, a common spinal issue in adolescence, involves a lateral curvature of the spine that can severely affect posture and mobility. Surgical correction aims to realign the spine to distribute the upper torso weight evenly over the pelvis. This balance in the frontal plane is vital as it ensures that the body can support itself with minimal stress at any given point.

Sagittal Plane Balance

Equally important is the balance in the sagittal plane, which involves the side view of the spine. Children with cerebral palsy, particularly those who are non-ambulatory, often spend a significant amount of time sitting. Proper sagittal alignment helps maintain the natural curve of the lower back, enhancing sitting posture and preventing complications such as pressure ulcers and sitting intolerance..

Post-surgical Outcomes and Care

Following surgery, the focus shifts to rehabilitation and ensuring that the spinal correction is maintained. Physical therapy, custom orthotics, and routine follow-ups play a significant role in postoperative care. These interventions are designed to strengthen the muscles around the spine, support the new alignment, and improve overall mobility.

Enhancing Life Through Balanced Care

Achieving spinal balance through surgical means provides a foundation upon which children with cerebral palsy can improve their mobility and enjoy a better quality of life. It allows them to engage more actively with their environment and participate in daily activities with greater ease and less pain.

A Team Approach to Treating Children with Cerebral Palsy

The journey to achieving and maintaining spinal balance in children with cerebral palsy is a concerted effort involving surgeons, physical therapists, and caregivers. Each plays a pivotal role in ensuring that the surgical benefits are long-lasting and that the child can lead a more comfortable and active life.

At Children’s Cerebral Palsy, we are dedicated to providing comprehensive care that addresses the unique needs of each child. Through advanced surgical techniques and a holistic approach to rehabilitation, we strive to enhance the lives of children with cerebral palsy and empower their families with knowledge and support.

Click here to schedule a consultation today.

May 2, 2024 News

What Causes Cerebral Palsy?

Cerebral palsy (CP) is a complex neurological condition that affects an individual’s movement, muscle tone, and posture. The common symptoms of CP include difficulty with fine motor skills, muscle stiffness or spasticity, and balance and coordination issues.

At Children’s Cerebral Palsy, we know the importance of educating individuals and families about this condition. To assist you, we have compiled a comprehensive explanation of the factors that influence the development of cerebral palsy.

Common Causes of Cerebral Palsy

While the exact triggers may vary significantly from one individual to another, they generally fall into several categories that impact brain health. Having a better understanding of what causes cerebral palsy can help identify risk factors and potential prevention measures. If you have a child with CP, understanding the causes can also help you navigate your child’s symptoms and provide necessary care.

Genetic Factors and Cerebral Palsy

Genetic predisposition plays a role in the development of cerebral palsy, although the extent of its influence varies from case to case. Certain genetic mutations and abnormalities associated with CP highlight the intricate interplay between genetics and neurodevelopment. For instance, mutations in genes involved in brain development and function, such as those related to neuronal migration and synaptogenesis, have been linked to an increased risk of CP.

Moreover, genetic factors may interact with environmental influences, further complicating the picture. Understanding the genetic underpinnings of cerebral palsy enhances our grasp of its origins and holds promise for personalized treatment approaches tailored to individual genetic profiles.

Perinatal Factors and Cerebral Palsy

The perinatal period, encompassing the time from conception to shortly after birth, represents a critical window during which various factors can impact fetal brain development and increase the risk of cerebral palsy. Complications during pregnancy, labor, and delivery can contribute to brain injury and neurological impairment in newborns.

Infections during pregnancy, maternal health conditions such as hypertension or diabetes, as well as certain obstetric complications like preterm birth or intrauterine growth restriction, have been implicated in the development of cerebral palsy. Additionally, factors such as birth asphyxia, which deprives the baby of oxygen during delivery, can lead to hypoxic-ischemic encephalopathy, which may be what causes cerebral palsy.

Environmental Factors and Cerebral Palsy

While genetics and perinatal factors play pivotal roles, environmental influences also exert a significant impact on the development of cerebral palsy. Exposure to toxins, pollutants, and harmful substances during pregnancy or early childhood may disrupt neurodevelopment and increase the likelihood of CP.

Furthermore, socio-economic factors, including inadequate access to healthcare, nutritional deficiencies, and limited prenatal care, can contribute to disparities in CP prevalence and outcomes among different populations. Addressing environmental risk factors requires a multifaceted approach encompassing public health initiatives, environmental regulations, and community-based interventions.

Brain Abnormalities

Structural abnormalities or malformations of the brain, such as congenital brain anomalies or abnormalities in neuronal migration, can predispose individuals to cerebral palsy. Genetic defects, infections, or environmental factors can cause these abnormalities.

Common brain abnormalities associated with cerebral palsy include periventricular leukomalacia (PVL), which is often seen in premature infants, and cortical malformations such as polymicrogyria. Understanding the specific brain abnormalities present in an individual’s case of CP can aid in treatment planning and management.

Request a Consultation for Cerebral Palsy Support

Children’s Cerebral Palsy understands the challenges and uncertainties of cerebral palsy. We are dedicated to providing comprehensive support, tailored treatment plans, and the latest resources to empower affected individuals and their families. Don’t wait to take the first step towards a better understanding of what causes cerebral palsy and how to manage it effectively. Request a consultation with us today, and together, we can explore the best pathways for care and support.

April 25, 2024 News

Helping Children & Families

I scheduled an appointment with Dr. Siambanes to see if my daughter was a candidate for scoliosis surgery. The results following her surgery were fantastic! She flew through surgery and came home only 4 days after! She now sits up straight, her incision has healed beautifully and there were no complications. I cannot express my gratitude to Dr. Siambanes for the amazing surgery he performed on my daughter. He alone took her on when no one else would touch her and now her life has been prolonged and she has a much better quality of life.

Mrs. Wakizaka
We would like to thank you for all you have done for our granddaughter. Not to very long ago things were not looking very good for Alyssa. That has all changed because of you. You have given her back her future. Thank you so very much. God bless you and keep you.

Mr. & Mrs. Wajenhurst
As a parent, hearing your child needs corrective surgery that includes placing rods and screws in the body, a five day hospital stay and three weeks of recovery can be overwhelming to say the least. Dr. Siambanes and his wonderful staff eased 100% of the stress and worry while making what was in my mind a harrowing ordeal equal to an afternoon visit to the dentist. The hospital staff was attentive and eager to help in anyway possible. My son’s recovery has gone so well and he has healed so quickly, family and friends are amazed he even had surgery.

Mrs. McKinnon